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OACIS: Resources – Links
www.improveLTO.com This NIH-funded project has completed the development of many FREE resources for researchers conducting long-term follow-up of patients. 1. A database of common surveys and tests for evaluating physical, cognitive, mental health, and quality of life outcomes; 2. Adaptable tools, templates, and manuals to reduce loss to follow-up of research participants, including an interactive searchable database of >600 retention strategies; and 3. A standalone statistical application to address “truncation due to death” when evaluating functional outcomes.
Post Intensive Care Syndrome (PICS) electronic brochure. This electronic brochure is created by the Society of Critical Care Medicine for ICU patients and their families. This helpful information discusses the health problems often faced by patients after ICU, how patients and their family can deal with PICS, and potential clinical /specialist resources for patients and families experiencing PICS. There are other links and videos at the bottom of the electronic brochure that can serve as a resource to ICU patients and their families.
Post-Intensive Care Syndrome Wikipedia entry on Post-Intensive Care Syndrome (PICS)
http://www.clinicaltrials.gov/ Search a registry of clinical trials
http://www.icudelirium.org/ ICU Delirium and Cognitive Impairment Study Group at Vanderbilt
http://www.mobilization-network.org An international network that connects clinicians and researchers who are interested in early mobilization of intensive care patients.