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Continuing Care Program

The Continuing Care Program offers ongoing medical care, education, and support services for persons with Huntington's disease (HD) and their families.

Our multidisciplinary team works with patients and families to develop a personalized program of medical care. Community referral and case management services are integral components of the treatment team's approach. Patients are required to have a primary-care physician in the community for non-HD related medical care.

The clinic currently meets on Wednesdays in Meyer 2-181 at The Johns Hopkins Hospital and provides ongoing HD treatment through environmental interventions, medications, education, and counseling. Patients are seen by a neuropsychiatrist specializing in HD as well as by our social worker. A variety of additional services are available, including occupational and physical therapy, and speech and swallowing evaluations.

Our social worker is available for consultation both during and outside of clinic hours on Mondays, Tuesdays, and Wednesdays. She offers evaluation and counseling and can assist in disability applications and nursing home placement. In addition, she runs a monthly support group.

The services of this clinic are provided on a fee-for-service basis. Some private insurance is accepted as well as Medicare and Medicaid. Because the clinic is supported by the Huntington's Disease Society of America HDSA, we can apply a sliding-scale based on income and we provide services for all patients and families.

Services provided:

  • Follow-up care
  • Consultations
  • Case management
  • Individual and family counseling
  • Referrals to occupational or physical therapy or other medical evaluations

For all clinical appointments, please call 410-955-2398

Huntington's Disease Center at Johns Hopkins
600 North Wolfe Street, Meyer Building, 2nd floor, Room 181
Baltimore, MD 21287

Phone: 410-955-2398

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