Patient and Family Events

Please plan to join us at the First Annual Olfactory Neuroblastoma Patient Education Meeting. We welcome you to learn about the latest advances in treatment and research; get to network with other patients and family members affected by olfactory neuroblastoma.

What: 

• Perspectives from patients and family members affected by olfactory neuroblastoma.
• Information on advances in surgery, radiation and other treatments.
• Research updates on genomics, outcomes, and clinical studies.
• Information about upcoming clinical trials.

This meeting is directed by Nyall R. London, Jr., M.D., Ph.D.; Gary Gallia, M.D., Ph.D.; and Murray Ramanathan, M.D.; and is sponsored by the NIDCD.

When:

Saturday, February 29, 2020.
9 a.m. - 1 p.m. EST

Where:

National Institutes of Health (NIH) Clinical Center, Building 10, Room 7S233
9000 Rockville Pike, 
Bethesda, MD 20892

Who:

Presenters will include people personally affected by olfactory neuroblastoma, and medical and scientific experts from the National Institute on Deafness and Other Communication Disorders (NIDCD), the National Cancer Institute (NCI), and Johns Hopkins University. The NIDCD and NCI are part of the NIH.

Please RSVP by February 27 to Dr. London, principal investigator of the NIDCD Sinonasal and Skull Base Tumor Program at nyall.london@nih.gov or 301-402-4216, including any questions or reasonable accommodation requests.