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Orthopaedic Surgery

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Hereditary Multiple Exostosis Treatment

Hereditary multiple exostosis is a genetic condition that can be passed down to a child from one parent or occur on its own due to a genetic mutation. It affects bone growth and development, causing bony growths known as exostoses to form in the body. The formation of exostoses stops once a child finishes growing. Any exostoses that are causing a child pain or discomfort should be surgically removed.

Hereditary Multiple Exostosis: What You Need to Know

father and daughter researching hereditary multiple exostosis on a laptop while holding child
  • Hereditary multiple exostosis is usually diagnosed around age 3.
  • Bony growths that result from hereditary multiple exostosis can cause soreness, deformities and differences in limb length.
  • In roughly 5 percent of patients, growths can also become cancerous.
  • Surgery is required to remove bony growths caused by hereditary multiple exostosis.

Patient Resources

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Why Choose Johns Hopkins for treatment of hereditary multiple exostosis?

Dr. Paul Sonseller with a model of the spine

Our Physicians

Rely on the expertise of our physicians to help you manage your child's hereditary multiple exostosis.

Meet our physicians:

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Our Staff

Our physician assistants (PAs) and nurse practitioners (NPs) specialize in pediatric orthopaedics and play a key role in providing care to our patients and families.

Meet our staff that cares for patients with hereditary multiple exostosis:

Mary Yost, F.N.P.-C.

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Maryland Patients

443-997-2663 (BONE)

 

Traveling for Care?

Whether you're crossing the country or the globe, we make it easy to access world-class care at Johns Hopkins.

Outside of Maryland (toll free)
410-464-6713

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International Patients
+1-410-502-7683

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