When I was 9 days old, I was diagnosed with branchio-oto-renal syndrome, which causes abnormalities in the neck, ears, and kidneys.
Over the following years, because of my condition, I had to see many specialists, including nephrologists, ophthalmologists, cardiologists and otolaryngologists, along with my pediatrician. I trusted each of them to make the best medical decisions to help me maintain a sense of normalcy in my life.
Over time, these physicians became my extended family. While it is important for doctors to treat a patient’s medical condition, I believe doctors should also connect with the patient in other areas of his or her life. One doctor who exceeded my expectations is pediatric nephrologist Cozumel Pruette, who has been by my side advising me on what steps to take to ensure the well-being of my kidneys. She is always offering me new opportunities to get involved with the transplant community and share my story.
As I was transitioning into my adult years, I needed to learn how to function independently. I could not thank my wonderful mother enough, who along the way helped me transition and manage my appointments and medications. Also, my doctors educated me on how best to take care of my medical needs.
During my senior year in high school, I decided to work on a capstone project for my Bio-Medical and Allied Health program. At first, I did not know what I was going to focus on—then it occurred to me to do something related to my kidney transplant. Since then I have been developing an app to help connect kidney transplant patients to help improve their non-adherence rates. Today, as a student at McDaniel College in Westminster, Md., this endeavor continues.
My other goal is to pursue a career in forensic science as a crime scene technician. Some days are harder than others, but I try not to let my condition define me. To live my life fully, I feel I should reach outside the box and try new things.