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About Trigeminal Neuralgia

Trigeminal Neuralgia is an extremely painful condition usually involving one side of the face. It usually occurs spontaneously, but is sometimes associated with trauma or dental procedures. It has a characteristic feeling of “shock-like” pain which travels through the face in a matter of seconds, but can occur in a repetitive fashion. Depending on where it occurs, there are common triggers that seem to cause the pain or worsen it. These are:

  • Touching the face
  • Brushing the teeth
  • Eating, drinking, chewing or talking
  • Shaving
  • Water hitting the face when taking a shower
  • Touching a tooth or the lip with the tongue
  • Feeling a slight wind or breeze on the face
  • Sometimes, nothing at all

The intensity of the pain is exceptional, and it is felt to be more severe than experiencing a heart attack, passing a kidney stone, or even having a baby. Unfortunately, since most observers have not experienced such discomfort, they often liken it to a toothache or a headache – but it is in a league by itself. There is no test to diagnose this condition. Although your clinician may order a CAT scan or MRI of the brain, as well as laboratory tests, the only way to diagnose this disorder is by taking a careful history to determine the quality and quantity of the pain, its triggers, and what makes it feel better or worse. In other words, you need to be very detailed in your description, and your clinician needs to listen carefully. There is no other pain quite like this.

Trigeminal neuralgia seems to occur much more often in women than men. It seems to be more common in older patients (usually over 60 years), and it occurs more on the right than the left. It is not usually a familial trait. It can be very active for a time, and then seem to disappear, sometimes for long periods, but always recurs later, often with more intensity. This does not mean than young male patients with left-sided pain whose mother had the same condition cannot have trigeminal neuralgia – or that it cannot occur on both sides. These are just the most common presenting characteristics. We also know that the most commonly accepted theory of what causes trigeminal neuralgia is vascular compression. There are blood vessels that travel with the nerve, and if they cause pressure on the nerve or irritate it, pain can occur. In addition, some demyelinating conditions, such as multiple sclerosis, can have adverse effects on nerves, including the trigeminal nerve and cause neuralgia. There is controversy over post-herpetic neuralgia (caused by shingles) and whether it can be related to this condition.

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Maryland Patients

To request an appointment or refer a patient, please contact the Johns Hopkins Trigeminal Neuralgia Center at 443-997-1808.
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Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337


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