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Understanding Rasmussen Syndrome

Rasmussen syndrome appears to be an immune-mediated response that causes one hemisphere of the brain to become inflamed and deteriorate. Inflammation may stop without treatment, but the damage is irreversible. Rasmussen syndrome is associated with seizures on one side of the body that do not respond well to conventional seizure medications.

Symptoms of Rasmussen syndrome

Rasmussen syndrome typically begins between 1 and 14 years of age. Seizures are often the first symptom to appear. Weakness and other neurological problems, intellectual function (including memory and sometimes, language) often begin 1 to 3 years after the seizures start.

Treatment for Rasmussen syndrome

Because Rasmussen syndrome is difficult or impossible to control with medication, in many cases, the most effective treatment option is surgery, including hemispherectomy.

Brain MRI scan before hemispherectomy
Brain MRI Scan Before Treatment
Brain MRI scan after hemispherectomy
Brain MRI Scan After Treatment

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For more information about Rasmussen syndrome or to meet with our doctors, please call 410-955-9100, Monday-Friday from 9:00 a.m. to 5:00 p.m.

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Maryland Patients

To request an appointment or refer a patient, please contact the Johns Hopkins Center for Rasmussen Syndrome  at 410-955-9100.
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Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337


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