Patient Stories
Pediatric Brain Tumor | Declan's Story
Five-year-old Declan had an MRI to monitor a growth hormone deficiency. Afterward, his parents got shocking news: The scan showed Declan had a large craniopharyngioma brain tumor. The family found themselves at the Johns Hopkins Children’s Center, where Declan had brain surgery the next day.
Spinal Subtraction Surgery | When Less Offers More
Born with spina bifida and tethered spinal cord, Keturah had a childhood of multiple spinal surgeries, many hospital stays and severe pain. As a young adult, she did not expect to find a specialist who could offer a novel solution — and essentially change the course of her life.
-
Hemangioblastoma Spine Tumor | Bridget’s Story
After an MRI revealed a large hemangioblastoma tumor on her spinal cord, Bridget and her family came to Johns Hopkins for care. There, a multidisciplinary team assembled to get Bridget back on the soccer field.
-
Chiari Malformation | Adelynn's Story
As a baby, Adelynn was diagnosed with a Chiari malformation that was interfering with her ability to eat, sleep and breathe. Her family made the trip from South Carolina to Johns Hopkins.
-
Surgical Approach Saves Teen from Lifetime of Violent Seizures | Ryan's Story
At the age of 3, Ryan began experiencing shaking in his right leg. He was later diagnosed with idiopathic epilepsy that left him bound to a wheelchair. Fortunately, a new diagnosis and treatment plan would eventually leave his wheelchair collecting dust.
-
Complex Spinal Reconstruction | Danica's Story
Diagnosed with a chiari malformation and atlas assimilation as a toddler, Danica underwent surgery at a very young age to prevent further damage to her brain and spine. But when the internal support structure broke, it threatened her life.
