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Neurofibromatosis Center Doctors and Staff
At the Johns Hopkins Comprehensive Neurofibromatosis Center, a team of doctors and other health care professionals works together to provide the most effective and safest treatment possible for patients with neurofibromatosis. The core members of the Johns Hopkins Comprehensive Neurofibromatosis Center care team include genetic counselors, neurologists, neuro-oncologists, neurosurgeons, and vascular surgeons.
Core Team Members

Langmead, Shannon, R.N., M.S.N., C.R.N.P., C.N.R.N.
Senior Adult Nurse Practitioner, Clinic Coordinator
Little, Emily, R.N.
NF Center Nurse
Slobogean, Bronwyn, P.A.-C.
Research Coordinator
Sondergaard, Krista, M.S., C.G.C.
Genetic Counselor
Other Members of the Neurofibromatosis Care Team
Other doctors and health care professionals with special expertise in neurofibromatosis may also be part of the care team. These could include:
- Audiology
- Dermatology
- Genetics
- Oncology
- Ophthalmologists
- Orthopedic surgeons
- Otolaryngology (ENT)
- Pain Medicine
- Plastic surgeons
- Radiology
The specific doctors and health care professionals involved will depend on the patient’s tumor, symptoms and treatment.
Social workers will also help coordinate care after the patient leaves the hospital.
For more information, contact the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center at 410-502-6732.
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Maryland Patients
For assistance with making an appointment, please contact the Johns Hopkins Comprehensive Neurofibromatosis Center at 410-502-6732.
Request an Appointment
Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337
Already a Patient?
Traveling for Care?
Whether you're crossing the country or the globe, we make it easy to access world-class care at Johns Hopkins.
Outside of Maryland (toll free)
410-464-6713
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Medical Concierge Services
International Patients
+1-410-502-7683
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Medical Concierge Services
