Neurofibromatosis Center Doctors and Staff

At the Johns Hopkins Comprehensive Neurofibromatosis Center, a team of doctors and other health care professionals works together to provide the most effective and safest treatment possible for patients with neurofibromatosis. The core members of the Johns Hopkins Comprehensive Neurofibromatosis Center care team include genetic counselors, neurologists, neuro-oncologists, neurosurgeons, and vascular surgeons.

Core Team Members

Allan Joel Belzberg, M.D.

Director, Peripheral Nerve Surgery
Co-Director, Neurosurgery Pain Research Institute
George J. Heuer Professor of Neurosurgery
Co-Director, Kennedy Krieger Pediatric Nerve Injury Program
Professor of Neurosurgery
Professor of Plastic and Reconstructive Surgery

 

Jaishri O'Neill Blakeley, M.D.

Director, The Johns Hopkins Comprehensive Neurofibromatosis Center
Professor of Neurology
Professor of Neurosurgery
Professor of Oncology

 

Carlos Guillermo Romo, M.D.

Assistant Professor of Neurology
Assistant Professor of Medicine
Assistant Professor of Oncology

 

Verena Staedtke, M.D., Ph.D.

Director of Pediatric Neurofibromatosis, Johns Hopkins Comprehensive Neurofibromatosis Center
Associate Professor of Neurology

 

 

Langmead, Shannon, R.N., M.S.N., C.R.N.P., C.N.R.N.

Senior Adult Nurse Practitioner, Clinic Coordinator

Little, Emily, R.N.
NF Center Nurse

Slobogean, Bronwyn, P.A.-C.
Research Coordinator

Sondergaard, Krista, M.S., C.G.C.
Genetic Counselor

Other Members of the Neurofibromatosis Care Team

Other doctors and health care professionals with special expertise in neurofibromatosis may also be part of the care team. These could include:

• Audiology
• Dermatology
• Genetics
• Oncology
• Ophthalmologists
• Orthopedic surgeons
• Otolaryngology (ENT)
• Pain Medicine
• Plastic surgeons
• Radiology

The specific doctors and health care professionals involved will depend on the patient’s tumor, symptoms and treatment.

Social workers will also help coordinate care after the patient leaves the hospital.

For more information, contact the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center at 410-502-6732.

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Maryland Patients

For assistance with making an appointment, please contact the Johns Hopkins Comprehensive Neurofibromatosis Center at 410-502-6732.
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Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337

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