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Johns Hopkins Children's Center PoopMD+: Research Study and App


 

PoopMD+: Johns Hopkins Children’s Center Mobile #App and Research Study

PoopMD+ Research Study and App: Frequently Asked Questions

  1. What should I know about this study?
    The PoopMD+ research study will ask you to complete a brief survey of up to 23 questions about two weeks after taking pictures of your baby’s poop using the PoopMD+ app. The survey will take three to five minutes to complete. You may be asked to complete the survey up to four times.
  2. What will happen if I choose to participate?
    If you choose to participate, you must download the free PoopMD+ iPhone app. About two weeks after you take photos of your baby’s poop color, you will receive a survey of up to 23 questions. It will take three to five minutes to complete. You may be asked to complete the survey up to four times.
  3. How are the data protected?
    The information you share is for research purposes only and cannot be used to identify you or your baby. Although the app allows you to add your baby’s name and date of birth to the profile, no identifiable data, such as your name, your baby’s name or your baby’s date of birth, are transmitted to Johns Hopkins or collected by the researchers.

    Researchers of PoopMD+ have access to the anonymous survey results and to the photographs taken with the app; they do not have access to any of your identifiable data.
  4. How will the study use my data?
    By completing the surveys, you will help PoopMD+ researchers better understand how people use the PoopMD+ app and how they respond to the information they receive from the app. Researchers are also interested in making sure the app is accurately interpreting baby stool colors.
  5. How much time will it take to participate?
    Each survey takes three to five minutes to complete. You may be asked to complete the survey up to four times.
  6. Can I choose not to participate?
    Currently, the PoopMD+ app requires participation in the study and is the only version of the app available for download.   
  7. What are the potential benefits of participation?
    Your completion of the survey(s) may advance pediatric liver disease research.
  8. What are the risks of participation?
    There are no risks if you decide to participate.
  9. Is there a risk to my privacy?
    The information you share is for research purposes only and cannot be used to identify you or your baby. Although the app allows you to add your baby’s name and date of birth to the profile, no identifiable data, such as your name, your baby’s name or your baby’s date of birth, are transmitted to Johns Hopkins or collected by the researchers.

    Researchers of PoopMD+ have access to the anonymous survey results and to the photographs taken with the app; they do not have access to any of your identifiable data.
  10. Will you share my information?
    Researchers of PoopMD+ have access to the anonymous survey results and to the photographs taken with the app. The research will be shared for the purposes of gathering data about pediatric liver disease but no identifiable data will be shared.
  11. Who is running this study?
    This study was developed by Douglas Mogul, M.D., M.P.H, a pediatric gastroenterologist at Johns Hopkins Children’s Center (protocol number #00079539), and Beneufit.

    Dr. Mogul also worked with HCB Health to create the PoopMD app, first released in 2014.
  12. Do I get any money for participating?
    There is no monetary benefit to participating.
  13. Does it cost anything to participate?
    It does not cost anything to participate, but you need to have access to an iPhone to download the free PoopMD+ app from the iTunes App Store.
  14. Can I withdraw after joining the study?
    Yes, you can withdraw from the study at any time by not completing a survey. However, you will not be able to use PoopMD+ app unless you complete the surveys.
  15. How do I consent to participate in the survey?
    Your completion of the survey will serve as your consent to be in this research study.