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Title:
NHLBI-MDS: The National Myelodysplastic Syndromes (MDS) Natural History Study
Protocol Number:
NCTNMDS
Phase:
NULL
Physician:
Amy Dezern
Sites:
Johns Hopkins Kimmel Cancer Center in Baltimore
Purpose:
The purpose of this project is to collect your blood, bone marrow and other tissues (eyebrow hairs, cells from the inside of your cheek (also called buccal cells), and/or skin) and information from you and other patients to investigate how your disease changes over time. This knowledge will allow doctors to better understand how MDS changes over time and may lead to better ways to prevent, detect, and treat MDS.
Eligibility:
Healthy adults who have been recently diagnosed with a blood disorder included among Myleodysplastic Syndromes (MDS) or are having a bone marrow sample collected to determine if you have a blood disorder called MDS.
Treatment:
Eligible patients will provide blood, bone marrow and other tissue samples, such as eyebrow hairs, cells from the inside of your cheek, and/or skin when enrolled on the study. You will then be followed by a doctor every 6 months for 3 years. We will collect some of these samples again as well as ask you to complete questionnaires at these time points.
Population:
Adult
Last Update
03/05/2019 05:03 AM