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Communication Skills Training Initiatives for Cancer Patients and their Care Partners
Protocol Number:
Debra Roter
Johns Hopkins Kimmel Cancer Center in Baltimore
The overall objective of the patient and care partner communication skill initiative is to support family-centered care by empowering patients and care partners to actively engage in communication that bridges cancer care in primary care and oncology settings and supports treatment decision-making and communication across the cancer continuum.
Adult patients with any current or prior diagnosis of cancer who receive primary care from participating clinicians at one of the two Johns Hopkins primary care survivorship clinical sites, or receive care at sites affiliated with the Johns Hopkins Clinical Research Network. Only patients of clinicians who agree to participate in the communication program will be approached. Inclusion criteria include greater than 50 years of age with a current or previous cancer diagnosis.Care partners eligible for participation include individuals who routinely accompany study eligible patients to their medical visits and have responsibility for helping the patient manage their healthcare. Care partners may only be jointly enrolled with a study eligible patient who agrees to their participation in the study. Patients may be enrolled in the study with or without a care partner. Care partners must be 21 years old or older to participate in this study.
Study participants will be split between two groups and the chance of being in one or the other group will be the same, like a coin coming up heads or tails. Patients and care partners will be put into the same group and will have the option of using the tools together or each may use the tools on their own.One group will be guided through the communication tools by the study assistant before that day’s medical visit and people in the second group will be asked to meet the study assistant before their next primary care or oncology visit to go through the communication tools at that time. Use of the tools should take about 20 minutes.Patients who agree to be part of the study will be asked some questions about themselves and how they routinely communicate with their primary care doctor and their oncologist. These questions should take about 10 minutes. Immediately after that day’s visit, they will be asked to answer more questions about the visit and their thoughts about what went well and what didn’t. It will not take more than 5 minutes to answer these questions.Before leaving the office, we will ask participants to let us know where and when their next scheduled primary care or oncology visit will take place. Study staff will call them 2 or 3 days before the scheduled visit as a reminder of the visit and the next part of the study. If they are in the group that did not already use the communication tool, they will be asked to come to their next visit about 30 minutes early to go through the tools with the study assistant before the visit. Use of the tools should take about 20 minutes. They will also be asked to answer some questions after their visit that should not take more than 5 minutes.If they already used the tool, they will be asked to go through the tool again at home before the upcoming visit. The study assistant will be available to answer any questions and to guide participants through the tool if help is needed. The study assistant will call back within a couple of days of the visit to ask how the visit went. These calls will take no longer than 10 minutes.
Last Update
08/08/2020 05:02 AM