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Leukemia Survivors Program

You’ve survived leukemia – so now what?

Whether you’ve just finished your last round of chemotherapy or you’ve been cancer-free for years, your long-term health care needs as a survivor are different from those of a “regular” patient. You may have had aggressive treatments to survive your disease—treatments that might cause health complications down the road. You may be looking for help in getting back to your school, your job, and your relationships as you move from cancer patient to cancer survivor. The Michael J. Garil Leukemia Survivors Program can help.

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Michael J. Garil Leukemia Survivors Program

The Michael J. Garil Leukemia Survivors Program is comprised of two main components. The program's Life Clinic at Johns Hopkins Sidney Kimmel Comprehensive Cancer Center promotes the long-term health of patients who have survived childhood leukemia. Here, we chart patients' new course to living healthy again by developing a long-term plan for a strong body and sound mind. The program's research initiatives aim to better understand the reasons certain patients are predisposed to the long-term effects of cancer therapy, as well as how adverse late effects impact the lives of survivors.

The Survivor Program benefits from the same expertise and groundbreaking research and clinical programs that have made The Johns Hopkins Sidney Kimmel Comprehensive Cancer Center a world leader in cancer treatment. The Center is on the list of survivor follow-up care clinics recommended by the Association of Cancer Online Resources (ACOR). We’re also members of the National Comprehensive Cancer Network and the National Cancer Institute’s Comprehensive Cancer Centers.

 

 

By Cancer Type

  • Survivors may experience the following late effects, depending on their treatment(s):

    • cardiovascular disease (including congestive heart failure, infection of the heart sac, and arrhythmias)
    • bladder damage
    • kidney damage
    • liver damage
    • lung damage
    • hormonal imbalances
    • reduced fertility or infertility in men and women
    • osteonecrosis, or bone death
    • higher risk of obesity
    • elevated cholesterol levels
    • hepatitis B and C (see "Blood Transfusion" for more information)
    • cognitive and learning difficulties ("chemo brain")
    • slow growth
    • secondary cancers
    • depression and other psychological disorders
  • Acute myeloid leukemia survivors may experience the following late effects, depending on their treatment(s):

    • cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
    • bladder damage
    • kidney damage
    • liver damage
    • hormonal imbalances
    • reduced fertility or infertility in men and women
    • bone death (osteonecrosis)
    • earning, memory, and cognition difficulties ("chemo brain")
    • hearing loss
    • hepatitis B and C (see "Blood Transfusion" for more information)
    • secondary cancers
    • depression and other psychological disorders
  • Chronic myeloid leukemia survivors may experience the following late effects, depending on their treatment(s):

    • cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
    • reduced fertility or infertility in men and women
    • lung damage
    • kidney damage
    • bladder damage
    • liver damage
    • learning, memory, and cognition difficulties ("chemo brain.")
    • hepatitis B and C (see "Blood Transfusion" for more information)
    • secondary cancers
    • depression and other psychological disorders
  • Chronic lymphocytic leukemia survivors may experience the following late effects, depending on their treatment(s):

    • cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
    • reduced fertility or infertility in men and women
    • elevated cholesterol levels
    • higher risk of obesity
    • kidney damage
    • bone death (osteonecrosis)
    • learning, memory, and cognition difficulties ("chemo brain.")
    • hepatitis B and C (see "Blood Transfusion" for more information)
    • secondary cancers
    • depression and other psychological disorders
  • Myelodysplastic syndrome survivors may experience the following late effects, depending on their treatment(s):

    • cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
    • reduced fertility or infertility in men and women
    • bladder damage
    • kidney damage
    • hepatitis B and C (see "Blood Transfusion" for more information)
    • secondary cancers
    • depression and other psychological disorders
    •  
  • Myeloproliferative disorder survivors may experience the following late effects, depending on their treatment(s):

    • cardiovascular disease (including congestive heart failure, infection of the heart sac, and heart arrhythmias)
    • reduced fertility or infertility in men and women
    • bladder damage
    • kidney damage
    • liver damage
    • learning, memory, and cognition difficulties ("chemo brain")
    • hepatitis B and C (see "Blood Transfusion" for more information)
    • secondary cancers
    • depression and other psychological disorders

 

By Cancer Treatments

  • Asparaginase

    • elevated cholesterol levels
    • higher risk of obesity Blood transfusion
    • hepatitis B (if transfusion received before 1972)
    • hepatitis C (if transfusion received before 1993)

     

    Busulfan

    • reduced fertility or infertility in men and women
    • lung damage and dysfunction

     

    Carboplatin

    • reduced fertility or infertility in men and women
    • kidney damage or dysfunction
    • tingling, pain or weakness in limbs, face (also called peripheral neuropathy)
    • hearing loss

     

    Carmustine

    • reduced fertility or infertility in men and women
    • lung damage and dysfunction

     

    Chlorambucil

    • cardiovascular damage and dysfunction
    • reduced fertility or infertility in men and women
    • secondary cancers

     

    Cladribine

    • tingling, pain or weakness in limbs, face (also called peripheral neuropathy)
    • kidney damage and dysfunction

     

    Clofarabine

    • no late or long-term effects known

     

    Cyclophosphamide

    • cardiovascular damage and dysfunction
    • bladder damage and dysfunction
    • kidney damage and dysfunction
    • reduced fertility or infertility in men and women
    • secondary cancers

     

    Cytarabine

    • cognition, learning and memory difficulties
    • reduced fertility or infertility in men and women
    • liver damage and dysfunction

     

    Dacarbazine

    • reduced fertility or infertility in men and women

     

    Dasatinib

    • no late or long-term effects known

     

    Daunorubicin

    • cardiovascular damage and dysfunction
    • secondary cancers

     

    Doxorubicin

    • cardiovascular damage and dysfunction
    • secondary cancers

     

    Epirubicin

    • cardiovascular damage and dysfunction
    • secondary cancers

     

    Etoposide

    • secondary cancers

     

    Fludarabine

    • kidney damage and dysfunction
    • bone death (osteonecrosis)
    • secondary cancers

     

    Gemcitabine

    • no late or long-term effects known

     

    Idarubicin

    • cardiovascular damage and dysfunction
    • secondary cancers

     

    Ifosfamide

    • reduced fertility or infertility in men and women
    • kidney damage and dysfunction

     

    Imatinib (Gleevec)

    • no late or long-term effects known
    •  
  • Mechlorethamine (nitrogen mustard)

    • cognition, learning and memory difficulties
    • reduced fertility or infertility in men and women
    • lung damage and dysfunction
    • secondary cancers

     

    Melphalan

    • lung damage and dysfunction
    • secondary cancers

     

    Mercaptopurine

    • liver damage and dysfunction

     

    Methotrexate

    • osteoporosis or osteopenia
    • cognition, learning and memory difficulties
    • kidney damage and dysfunction
    • liver damage and dysfunction

     

    Mitoxantrone

    • cardiovascular damage and dysfunction
    • secondary cancers

     

    Pegaspargase

    • no late or long-term effects known
    • reduced fertility or infertility in men and women
    • secondary cancers

     

    Radiation Therapy

    • cardiovascular damage and dysfunction
    • lung damage and dysfunction
    • kidney damage and dysfunction
    • liver damage and dysfunction
    • cognition, learning and memory difficulties
    • dental disorders (weak teeth and jaw, dry mouth)
    • hormonal disorders (thyroid, pancreas, pituitary gland)
    • chronic fatigue
    • slow growth and development
    • cataracts
    • bone death (osteonecrosis)
    • reducedfertility or infertility in men and women
    • hearing loss
    • secondary cancers

     

    Rituximab

    • no late or long-term effects known

     

    Steroids

    • osteoporosis or osteopenia
    • cataracts
    • bone death (osteonecrosis)

     

    Teniposide

    • secondary cancers

     

    Thioguanine

    • liver damage and dysfunction

     

    Thiotepa

    • reduced fertility or infertility in men and women

     

    Topotecan

    • reduced fertility or infertility in men and women

     

    Transplantation (bone marrow, stem cell or cord blood)

    • bone death (osteonecrosis)
    • lung damage and dysfunction (after developing graft versus host disease)

     

    Tretinoin

    • increase in pressure inside skull (pseudotumor cerebri)

     

    Vinblastine

    • tingling, pain or weakness in limbs, face (also called peripheral neuropathy)

     

    Vincristine

    • tingling, pain or weakness in limbs, face (also called peripheral neuropathy)
    •  
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