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Pediatric Palliative Care Research

Hopkins Children’s is a member of a multi-institutional education and quality improvement program of the Initiative for Pediatric Palliative Care (IPPC). Within this project, members of the Harriet Lane Compassionate Care Team and the Harriet Lane Compassionate Care Committee have participated in:

  • Evaluation of the effectiveness of patient care conferences, palliative care rounds and debriefing sessions on health care professional confidence and competence in providing palliative and end-of-life care.
  • Mechanisms of institutional change related to integration of a Pediatric Palliative Care Program
  • Measuring the Impact of Initiating a Pediatric Palliative Care Program
  • Survey research regarding health care professional knowledge and attitudes about caring for children with life-threatening conditions
  • Relationship of trust to the experience of caregiver suffering in the pediatric intensive care unit (PICU)

Other areas of research include the following:

  • Exploring the concept of hope in providing pediatric palliative care.
  • Translating “values history” advance directives for use in pediatrics.
  • Development of a “pathway” for integrating basic and advanced components of palliative care throughout Hopkins Children’s.
  • Integration of palliative care with antiretroviral therapy for children and families in the U.S. and internationally.

Harriet Lane Compassionate Care
hlccsupport@jhmi.edu
410-614-4750

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