Special Projects
What I Wish You Knew…Sharing Perspective from the Bedside
Patients and families from our six Family Advisory Councils were asked a basic question: What is important to you during your health care experience? What do you wish the health care team knew? Each council created a wish list, all with many of the same common themes: respect, communication and partnership. These wishes embody the building blocks of patient- and family-centered care.
We've Been There, Too
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Our Journey in Special Education
At every meeting we were outnumbered—we knew we needed to be strong advocates, but how?
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The Things I Wish Someone Had Told Me
A mother reflects on her son’s hospital experience and death.
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Chronicling Your Child's Care
Keeping a medical journal can help you gain some control over an out-of-control situation.
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Our New Normal
We weren’t prepared for a life-threatening diagnosis just 24 hours after our son was born.
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What Our Son Taught Us
Your journey will be uniquely yours—take one day at a time and embrace the moments.
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When Your Child Needs Lifelong Medical Care
Treat the chronically ill child like any other child—love him or her unconditionally and set goals.