What I Wish You Knew
What I Wish You Knew…Sharing Perspective from the Bedside
Patients and families from our six Family Advisory Councils were asked a basic question: What is important to you during your health care experience? What do you wish the health care team knew? Each council created a wish list, all with many of the same common themes: respect, communication and partnership. These wishes embody the building blocks of patient- and family-centered care.
We've Been There, Too
In a major initiative, called “We’ve Been There, Too,” Pediatric Family Advisory Council members launched a series of online audio segments to share their hospital experience with other parents. Topics include adjusting to a chronic medical condition, coping with long-term hospitalization, and chronicling a child’s care.
Our Journey in Special Education
At every meeting we were outnumbered—we knew we needed to be strong advocates, but how?
The Things I Wish Someone Had Told Me
A mother reflects on her son’s hospital experience and death.
Chronicling Your Child's CareKeeping a medical journal can help you gain some control over an out-of-control situation.
A Teaching Tool We Treasure
Our New Normal
We weren’t prepared for a life-threatening diagnosis just 24 hours after our son was born.
What Our Son Taught Us
Your journey will be uniquely yours—take one day at a time and embrace the moments.
When Your Child Needs Lifelong Medical Care
Treat the chronically ill child like any other child—love him or her unconditionally and set goals.
Explore the Children's Center
Find A Pediatric Specialist
Search our experts by specialty, disease, or condition
Get the facts on diseases, conditions, tests and procedures