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Director of the Greenberg Center for Skeletal Dysplasias
Julie Hoover-Fong, MD, PhD is an Associate Professor in the Department of Pediatrics and Director of the Greenberg Center for Skeletal Dysplasias in the McKusick-Nathans Institute of Genetic Medicine at Johns Hopkins University. As a board certified clinical geneticist, she practices and oversees the clinical operations and research ventures for the patients with genetic skeletal conditions who are served by the Greenberg Center. Her clinical team develops and improves diagnostic and treatment guidelines for comprehensive care of patients with all types of bone conditions, congenital anomalies, and complex chromosomal abnormalities. Dr. Hoover-Fong also mentors and teaches medical students, residents and genetic medicine trainees. As an active clinical researcher, she is the Principal Investigator of multiple multi-center clinical trials and investigator-initiated clinical studies for patients with a variety of genetic conditions including achondroplasia, orofacial clefting and hypophosphatasia. She is also a co-investigator on the ELSI and Phenotype Review Committees for an NIH-sponsored grant to identify the genetic cause of Mendelian conditions via whole genome sequencing. From a clinical service perspective, she is an active member of the Medical Advisory Board of the Little People of America, the Johns Hopkins Clinical Research Center Protocol Review Committee and is a charter member of the International Skeletal Dysplasia Management Consortium.
Dr. Hoover-Fong received her B.S. in pre-med Human Nutrition with honors and distinction in addition to a Russian minor, and her M.D. from The Ohio State University. She completed her internship and residency in the Department of Pediatrics at Washington University in St. Louis where she was named the James P. Keating Outstanding Resident of the Year. After pediatric board certification, she served as a clinical instructor hospitalist in the Barnes-Jewish-Christian (BJC) Hospital System at Washington University. In 1999 she joined the Medical Genetics Postdoctoral Training Program at The Johns Hopkins University to specialize in clinical genetics, and became board certified by the American Board of Medical Genetics in 2002. During her fellowship, Dr. Hoover-Fong also matriculated into the Graduate Training Program in Clinical Investigation at the Johns Hopkins School of Public Health and School of Medicine, earning her Ph.D. in Clinical Investigation from Johns Hopkins University in 2008. After joining the Department of Pediatrics and McKusick-Nathans Institute of Genetic Medicine faculty at Johns Hopkins in 2002, she was recruited by the Institute of Genetic Medicine in 2003 to be the Clinical Director of the Greenberg Center for Skeletal Dysplasias under Dr. Victor McKusick, then Director of the Center. Dr. Hoover-Fong reestablished the genetics skeletal dysplasia clinical service at Johns Hopkins in 2004, and became Director of the Greenberg Center in 2008. She continues to build multidisciplinary clinical services for patients with all forms of bone disease with formal expansion into metabolic bone disease in 2010, orofacial clefting in 2012 and craniosynostosis in 2014.
Adekemi Yewande Alade, M.D., M.P.H.
Senior Research Program coordinator
Yewande Alade, MD, MPH is a Senior Research Program Coordinator at the Greenberg Center. She obtained her bachelor of medicine and surgery at the University of Ibadan, College of medicine and a Master’s in Public Health at the Johns Hopkins Bloomberg School of Public Health with a concentration in Epidemiology and Biostatistical methods. She presently oversees the short statured Skeletal Dysplasia research at the center, including the multi-center achondroplasia natural history study.
Natalie Beck, M.G.C., C.G.C.
Certified Genetic Counselor
Natalie Beck, MGC, CGC is a certified genetic counselor in the Institute of Genetic Medicine at Johns Hopkins. She provides genetic counseling to pediatric and adult patients and their families in the Greenberg Skeletal Dysplasia Clinic and the multi-disciplinary Johns Hopkins Cleft Clinic and Craniofacial Clinic. She has a particular interest in the area of patient advocacy. Prior to coming to Johns Hopkins, she was clinical genetic counselor at Rhode Island Hospital. She completed her undergraduate training at The George Washington University in Washington, DC with a Bachelor of Science in Pre-Professional Health/Exercise Science and her Masters in Genetic Counseling at the University of Maryland School of Medicine in Baltimore, MD. She is a diplomate and member of the American Board of Genetic Counseling and a member of the National Society of Genetic Counselors.
Colleen Gioffreda, B.A.
Senior Program Coordinator
Colleen Gioffreda, BA is the Clinical Operations Program Administrator for the Greenberg Center for Skeletal Dysplasias in the Institute of Genetic Medicine at the Johns Hopkins University School of Medicine. She coordinates multi-disciplinary care for skeletal dysplasia patients, provides resources to patients and parents, fields patient inquiries, directs the Little People of America Medical Advisory Board clinic at the national conferences, and maintains the clinical databases for both the cleft and craniofacial clinics. She also assists Dr. Hoover-Fong with managing the clinical trial budgets and office administration for the Center.
Kira Lurman, R.N.
Clinical and Research Nurse
Kira Lurman, RN is a clinical and research nurse at Johns Hopkins for almost twenty years. She completed her Bachelor of Nursing Science degree at Jacksonville University in Tampa, FL and joined the Greenberg Center team in 2014. She provides medical care to our pediatric and adult patients in the Skeletal Dysplasia and Endocrine-Genetics combined clinics. She also coordinates and carries out the research visits for our patients who are participating in clinical trials.
John McGready, Ph.D.
John McGready, PhD is an Associate Scientist in the Department of Biostatistics at the Johns Hopkins Bloomberg School of Public Health. Since joining the faculty in 1999, Dr. McGready splits his time among teaching, research collaborations and administrative responsibilities. As an educator, he teaches introductory through advanced graduate biostatistics courses at the School of Public Health in Baltimore as well as a Johns Hopkins online biostatistics course to students worldwide. As a researcher, he has innumerable collaborations across the campus including landmark work on our Greenberg Center team to develop growth curves for patients with achondroplasia.
Kerry Schulze, Ph.D.
Kerry Schulze, PhD earned her PhD at the Johns Hopkins Bloomberg School of Public Health in the Department of International Health in the Division of Human Nutrition assessing the relationship between calcium metabolism and bone mineralization in preadolescent and adolescent girls with cystic fibrosis. She joined the JHBSP faculty to direct a research laboratory to assess vitamin and mineral status of women and children from community-based studies in Nepal, Bangladesh, and elsewhere. This work has translated more broadly into the assessment of nutritional status—whether micronutrients, anthropometry, body composition, or physical activity—of diverse patient groups and populations. Her work in the Greenberg Center has centered around characterizing growth and body composition, and related risk of chronic disease, among children and adults with skeletal dysplasias.
Katrice Walker is the Clinic Coordinator for our Skeletal Dysplasia Clinic in the Institute of Genetic Medicine at the Johns Hopkins University School of Medicine. She handles patient scheduling and coordinates their visit to all other necessary appointments.