Johns Hopkins ARVC Patient Community
The dark blue represents countries where the Johns Hopkins ARVC community members live. Our ARVC Center of Excellence is the largest community of ARVC patients worldwide.
By joining our patient registry, you can contribute to the knowledge base that drives research and leads to care that helps people like you and your family. Sign up for our patient registry.
Our patients share their personal stories about ARVC and how a diagnosis has affected them and their families.
At the Heart of Precision Medicine
Jasonee was diagnosed with Arrythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C) in 2012. After a sudden dramatic cardiac event, a series of doctors in her hometown struggled to identify a diagnosis and recommend solutions. She found experts at Johns Hopkins, who quickly determined her condition was a rare familial disorder that causes sudden cardiac death in young, apparently healthy individuals. Now receiving proper treatment and observation, Jasonee and her family feel reassured and confident that this condition is manageable and under control, allowing her to live a full and rewarding life with her young son.
When John Campanella was diagnosed with early symptoms of arrhythmogenic right ventricular dysplasia/cardiomyopathy (ARVD/C) at Johns Hopkins 20 years ago, the only hospitals with specialized ARVD/C centers were in Padua, Italy, and in Arizona. Read more.
Sinclair Cares: Heart condition affecting young athletes. Watch the video.
The 20th Annual ARVD/C Patient and Family Seminar
Saturday, May 4, 2019
Stay tuned for registration information for our anniversary celebration event! Watch videos from past patient seminars.
Feeling The Beat: Stories from the ARVC Community