At the Precision Medicine Center For Excellence for Arryhythmogenic Right Ventricular Cardiomyopathy (ARVC) and Complex Arrhythmias, we take the most comprehensive approach to care by tapping into the knowledge of experts from a wide range of fields to work with you and your family on prevention, early diagnosis, and disease management. Our genetics experts offer testing, counseling and treatment plans through both in-person visits and telegenetics, which is long distance genetics counseling using the latest tools in telemedicine.
At the center of excellence, we have the largest registry worldwide of ARVC patients, and our research informs current standards of care.
ARVC Center Goals
To do this we:
collaborate with experts around the world to build a robust patient database that further drives research to improve treatments.
share information about ARVC with general practitioners who may not be familiar with its symptoms and treatment options. We do this by:
traveling to speaking engagements, where we present our data during physician education programs and conferences.
hosting our annual ARVC conference.
encourage patients to join our patient registry database, in which each patient’s unique genetic information expands the ARVC knowledge base.