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ARVD/C Research Opportunities

ARVD/C researchers are committed to gaining a better understanding of ARVD/C and developing ways to manage it. Johns Hopkins has the only program solely dedicated to understanding ARVD/C. Our program has two main registries: the ARVD/C Patient Registry and the ICD Registry, which house multiple substudies within.

Before you join any study, you should consider whether or not participating in medical research is right for you.

ARVD/C studies are being performed throughout the world. Find a participating location.

To learn more about ARVD/C research, call us at 410-502-7161.

To request an appointment with the Johns Hopkins ARVD/C Program, please contact Crystal Tichnell, MGC at 410-502-7161 or