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The Johns Hopkins ARVD/C Program publishes a newsletter biannually, winter and summer, sharing important clinical and research updates.
Events
ARVC Patient and Family Seminar
It’s hard to believe we are saying this yet again, but due to the ongoing COVID-19 pandemic and Johns Hopkins University guidelines, this year’s seminar will be held virtually on Saturday, March 12th, 2022. It is a bit earlier this year because if we can’t gather together, who wants to spend another Saturday afternoon in a Zoom conference if it’s beautiful outside?!?! We must carry on! This year we will highlight our recent research accomplishments and introduce some exciting steps forward in treatment. You won’t want to miss these exciting updates!
This year’s virtual conference will again take place utilizing the WHOVA online platform. Be sure to register and download the app so that you can take advantage of networking and viewing the agenda.
Registration will go live on January 15th here.
View 2021 Seminar PresentationsWatch videos from prior ARVD Family Seminars
2021 ARVC Patient and Family Seminar
The ‘Rub’ on RV Arrhythmias in Athletes
Psychosocial Care and the Importance of the Multidisciplinary Clinic
How Genetic Testing Helps Families with ARVC: Insights from Down Under
Defibrillators in ARVC: Why we use them and how they work
Experimental Models of Plakophilin-2 Deficiency: New lessons and future translational perspectives
Seeking Your Best Possible Self
Past ARVD/C Seminars
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- ABCs of ARVC: An Introduction to Arrhythmias and Cardiomyopathy
- Ablation and Sympathectomy in ARVD/C
- ARVD/C Program Clinical Research Update
- Clinical Drug Trial in ARVC
- Diagnosing and Managing ARVC: What have we learned in 22 years
- Myocardial Inflammation: A Pathologically Prevalent Phenotype in Arrhythmogenic Cardiomyopathy
- The Johns Hopkins Arrhythmogenic Right Ventricular Cardiomyopathy 1st Virtual Mini Session
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Watch the 2012 presentations online
- Patient Story - Hugh Calkins, MD
- Catheter Ablation of VT in ARVD - Harikrishna Tandri, MD
- The Science of ARVD/C: What We Have Learned - Mario Delmar, MD
- MR Imaging of ARVD/C - Harikrishna Tandri, MD
- Johns Hopkins Research Opportunities - Cindy James, ScM, PhD, CGC
- Healthy Living Workshop: Yoga - Stefanie Toise, Phd, MPH
- An Inquiry into the Efficacy of Yoga in Managing Anxiety and Depression in ARVD Patients - Stefanie Toise, Phd, MPH
- Johns Hopkins Development - Shannon Curley
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Watch the 2011 presentations online
Jeffrey Saffitz, MD, PhD, Beth Israel Deaconness Medical Center
Lecture: Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of DiseaseSamuel Sears, PhD, East Carolina University
Lecture: The Amazing Race: You and Your Family and ARVD- Epicardial Ablation in ARVD - Harikrishna Tandri, MD
- Genetic Counseling and Testing for ARVD/C - Brittney Murray, MS
- Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of Disease - Jeffrey E. Saffitz, MD, PhD
- The Amazing Race: You and Your Family and ARVD - Samuel F. Sears, PhD
- The Johns Hopkins ARVD Program and Program Overview - Hugh G. Calkins, MD, Crystal Tichnell, MGC
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Professor Gaetano Theine, Professor of Cardiovascular Pathology, Institute of Pathology, University of Padua, Italy
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Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular Dysplasia and Changes in ARVD/C Diagnostic Criteria -
Richard Hauer, MD, Professor of Cardiology, Division of Heart and Lungs, University Medical Center, Utrecht, The Netherlands
Lecture: Addressing ARVD/C in The NetherlandsSamuel Sears, PhD, East Carolina University
Lecture: Psychosocial Challenges for ICD Patients -
William McKenna, MD, Professor of Cardiology, UCL Division of Medicine
Lecture: Genetics and Diagnosis of ARVC -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular DysplasiaSamuel Sears, PhD, Gainesville, Florida
Lecture: Pscyhosocial Challenges for ICD Patients -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Jeffrey A. Towbin, MD, Baylor College of Medicine, Houston, Texas -
Domenico Corrado, MD, PhD, University of Padua, Italy
Lecture: Diagnostic and therapeutic strategies in arrhythmogenic right ventricular cardiomyopathy/dysplasia -
Kathy Hodgkinson, MD, Genetic Counselor, Memorial University
Lecture: The Newfoundland Experience with ARVD -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: How to Better Diagnose and Treat ARVD -
Thomas Winchter MD, FESC, Muenster, Germany
Lecture: What the Patient Should Know about ARVD -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Lecture: You See Only What You Look For and Recognize Only What You Know
Newsletter Archives
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