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The Johns Hopkins ARVD/C Program publishes a newsletter biannually, winter and summer, sharing important clinical and research updates.



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ARVC Patient and Family Seminar

Registration for the 2023 ARVC Patient and Family Seminar is now open!

Please join us for our annual ARVC Patient and Family Seminar to be held IN-PERSON this year at Johns Hopkins on Saturday, April 22, 2023. We are excited to have 2 guest speakers this year: Mario Delmar, M.D., Ph.D. from New York University to share about his basic science research on ARVC and Sam Sears, Ph.D. from East Carolina University to speak on the psychosocial care of patients and families impacted by ARVC. In addition, we'll have members of the Johns Hopkins faculty present on various topics including genetics, management, research, and prospects of gene therapy. The afternoon session will offer discussion groups, Q&A, and research opportunities. Join us Friday evening, April 21st, 2023 for a meet 'n' greet and heavy hors d'oeuvres. This is a great opportunity to meet other attendees and some members of the ARVC Program staff. For additional information, please email Crystal Tichnell at [email protected].

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View 2022 Seminar Presentations


Watch videos from prior ARVD Family Seminars

2022 ARVC Patient and Family Seminar

Desmoplakin (DSP), Myocarditis, and ARVC

Heart Transplant for ARVC

Improving ARVC Diagnosis Through Machine Learning

How Big-data Population Genomics Is Improving Our Understanding of the Genetics of ARVC

A Year in Review

Updates in ARVC Genetics

PVC and Follow Up – Why Holter Matters

3 Things that COVID Taught Everyone without ARVC


Past ARVD/C Seminars

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