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The Johns Hopkins ARVD/C Program publishes a newsletter biannually, winter and summer, sharing important clinical and research updates.
Events
ARVC Patient and Family Seminar
With the continued uncertainty about where we will be in Spring with regard to COVID-19, we are planning a virtual 2021 Patient and Family ARVC Conference on May 1st, 2021. It will certainly be difficult to not see you all in person for 2 years in a row, but for the safety of everyone, we fill it is the right decision at this time. With that being said, we do have a real treat for you this year. Given the virtual nature, we have invited over 15 of our dearest friends and collaborators from around the world to share short presentations on how they are moving the field of ARVC forward.
Registration for the seminar will be conducted through the WHOVA platform that we will be using for the seminar. To view the presentations, you will need to be registered for the event whether you are able to view during the live presentation on May 1st, 2021 or plan to view later. Registration will open on February 1st, 2021.
Registration Link: ARVC Patient and Family Seminar Registration | Whova
Virtual SADS International Conference
The Johns Hopkins ARVC Program, in partnership with the SADS Foundation, will be hosting a virtual ARVC mini-session on Sunday, November 8th, 1-5pm Eastern time. We hope many of you will be able to tune in! SADS will be hosting their annual conference as well, the day before, on Saturday, November 9th, 2020. Lot of good information so please join us! See the link below where you can find all of the necessary information to register, as well as instructions on how to login for these free virtual conferences.
Learn more about the SADS conferenceContact us for more information
- View Presentations from the November 2020 ARVC Mini-Session
- The 2020 Seminar has been CANCELLED
- Watch videos from prior ARVD Family Seminars
- View Presentations from 2019 Seminar
Past ARVD/C Seminars
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Watch the 2012 presentations online
- Patient Story - Hugh Calkins, MD
- Catheter Ablation of VT in ARVD - Harikrishna Tandri, MD
- The Science of ARVD/C: What We Have Learned - Mario Delmar, MD
- MR Imaging of ARVD/C - Harikrishna Tandri, MD
- Johns Hopkins Research Opportunities - Cindy James, ScM, PhD, CGC
- Healthy Living Workshop: Yoga - Stefanie Toise, Phd, MPH
- An Inquiry into the Efficacy of Yoga in Managing Anxiety and Depression in ARVD Patients - Stefanie Toise, Phd, MPH
- Johns Hopkins Development - Shannon Curley
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Watch the 2011 presentations online
Jeffrey Saffitz, MD, PhD, Beth Israel Deaconness Medical Center
Lecture: Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of DiseaseSamuel Sears, PhD, East Carolina University
Lecture: The Amazing Race: You and Your Family and ARVD- Epicardial Ablation in ARVD - Harikrishna Tandri, MD
- Genetic Counseling and Testing for ARVD/C - Brittney Murray, MS
- Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of Disease - Jeffrey E. Saffitz, MD, PhD
- The Amazing Race: You and Your Family and ARVD - Samuel F. Sears, PhD
- The Johns Hopkins ARVD Program and Program Overview - Hugh G. Calkins, MD, Crystal Tichnell, MGC
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Professor Gaetano Theine, Professor of Cardiovascular Pathology, Institute of Pathology, University of Padua, Italy
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Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular Dysplasia and Changes in ARVD/C Diagnostic Criteria -
Richard Hauer, MD, Professor of Cardiology, Division of Heart and Lungs, University Medical Center, Utrecht, The Netherlands
Lecture: Addressing ARVD/C in The NetherlandsSamuel Sears, PhD, East Carolina University
Lecture: Psychosocial Challenges for ICD Patients -
William McKenna, MD, Professor of Cardiology, UCL Division of Medicine
Lecture: Genetics and Diagnosis of ARVC -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular DysplasiaSamuel Sears, PhD, Gainesville, Florida
Lecture: Pscyhosocial Challenges for ICD Patients -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Jeffrey A. Towbin, MD, Baylor College of Medicine, Houston, Texas -
Domenico Corrado, MD, PhD, University of Padua, Italy
Lecture: Diagnostic and therapeutic strategies in arrhythmogenic right ventricular cardiomyopathy/dysplasia -
Kathy Hodgkinson, MD, Genetic Counselor, Memorial University
Lecture: The Newfoundland Experience with ARVD -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: How to Better Diagnose and Treat ARVD -
Thomas Winchter MD, FESC, Muenster, Germany
Lecture: What the Patient Should Know about ARVD -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Lecture: You See Only What You Look For and Recognize Only What You Know
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