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The Johns Hopkins ARVD/C Program publishes a newsletter biannually, winter and summer, sharing important clinical and research updates.
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- ARVC Patient and Family Seminar
- Virtual SADS International Conference
- Seminar 2020 cancelled
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Events
ARVC Patient and Family Seminar
Registration for the 2024 ARVC Patient and Family Seminar is now open!
You and your family members are invited to join us for our annual ARVD/C Seminar! This year the seminar will once again be held in-person, but the scientific presentations will also be livestreamed for those unable to join us in Baltimore. We hope you will consider joining in person to take advantage of the opportunity to meet other individuals and families, participate in research opportunities, and interact with industry, specifically gene therapy companies.
We are thrilled to have two invited guest speakers, Sam Sears, Ph.D., cardiac psychologist, and Andre La Gerche, M.B.B.S., Ph.D., sports cardiologist. In addition, we will have presentations from our own Johns Hopkins faculty; Andreas Barth, M.D., Ph.D.; Nisha Gilotra, M.D.; Oliver Monfredi, M.D.; Cindy James, Ph.D.; and Brittney Murray, M.S. You won’t want to miss this unique opportunity to meet and network with other families affected by ARVD/C and to learn the latest advances in the field. It will be exciting to share the collaborative efforts all around the world in solving the mysteries of ARVD/C.
Make plans to come into Baltimore early to attend a reception at the Hilton Garden Inn Friday evening (7 p.m. -9 p.m.). Heavy hors d’oeuvres will be served. This event is for patients and family members only. No industry representatives please.
Please register early! There is no registration fee for this seminar, but we continue to be mindful of our gathering capacity. You must register to attend.
When: Saturday, April 27th, 2024 8:00 a.m. -5:00 p.m.
Cost: Registration is FREE. You just need to get here!
Who: Patients and Families affected by ARVD/C, Healthcare Professionals
Where: Chevy Chase Conference Center Auditorium
Main level of Sheikh Zayed Tower
1800 Orleans Street
Baltimore, Maryland 21287
Registration: ALL participants must register! It is also helpful to list names of family members that will be attending with you so we can determine appropriate research opportunities. Register online by April 13th.
Register Now Download Event Flyer
Role of Catheter Ablation in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
Heart Failure in ARVC: Symptoms, Treatments and Trajectories
Living with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
Gene Therapy in Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
Desmoplakin (DSP) Cardiomyopathy
Primer for the Day - The ABC’s of ARVD/C
The Johns Hopkins ARVC Program: Then and Now
Longitudinal Prediction of Ventricular Arrhythmic Risk in ARVC
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- Desmoplakin (DSP), Myocarditis, and ARVC
- Heart Transplant for ARVC
- Improving ARVC Diagnosis Through Machine Learning
- How Big-data Population Genomics Is Improving Our Understanding of the Genetics of ARVC
- A Year in Review
- Updates in ARVC Genetics
- PVC and Follow Up – Why Holter Matters
- 3 Things that COVID Taught Everyone without ARVC
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- The ‘Rub’ on RV Arrhythmias in Athletes
- Psychosocial Care and the Importance of the Multidisciplinary Clinic
- How Genetic Testing Helps Families with ARVC: Insights from Down Under
- Defibrillators in ARVC: Why we use them and how they work
- Experimental Models of Plakophilin-2 Deficiency: New lessons and future translational perspectives
- Seeking Your Best Possible Self
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- ABCs of ARVC: An Introduction to Arrhythmias and Cardiomyopathy
- Ablation and Sympathectomy in ARVD/C
- ARVD/C Program Clinical Research Update
- Clinical Drug Trial in ARVC
- Diagnosing and Managing ARVC: What have we learned in 22 years
- Myocardial Inflammation: A Pathologically Prevalent Phenotype in Arrhythmogenic Cardiomyopathy
- The Johns Hopkins Arrhythmogenic Right Ventricular Cardiomyopathy 1st Virtual Mini Session
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Watch the 2012 presentations online
- Patient Story - Hugh Calkins, MD
- Catheter Ablation of VT in ARVD - Harikrishna Tandri, MD
- The Science of ARVD/C: What We Have Learned - Mario Delmar, MD
- MR Imaging of ARVD/C - Harikrishna Tandri, MD
- Johns Hopkins Research Opportunities - Cindy James, ScM, PhD, CGC
- Healthy Living Workshop: Yoga - Stefanie Toise, Phd, MPH
- An Inquiry into the Efficacy of Yoga in Managing Anxiety and Depression in ARVD Patients - Stefanie Toise, Phd, MPH
- Johns Hopkins Development - Shannon Curley
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Watch the 2011 presentations online
Jeffrey Saffitz, MD, PhD, Beth Israel Deaconness Medical Center
Lecture: Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of DiseaseSamuel Sears, PhD, East Carolina University
Lecture: The Amazing Race: You and Your Family and ARVD- Epicardial Ablation in ARVD - Harikrishna Tandri, MD
- Genetic Counseling and Testing for ARVD/C - Brittney Murray, MS
- Arrhythmogenic Cardiomyopathy: New Insights into Diagnosis and Mechanisms of Disease - Jeffrey E. Saffitz, MD, PhD
- The Amazing Race: You and Your Family and ARVD - Samuel F. Sears, PhD
- The Johns Hopkins ARVD Program and Program Overview - Hugh G. Calkins, MD, Crystal Tichnell, MGC
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Professor Gaetano Theine, Professor of Cardiovascular Pathology, Institute of Pathology, University of Padua, Italy
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Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular Dysplasia and Changes in ARVD/C Diagnostic Criteria -
Richard Hauer, MD, Professor of Cardiology, Division of Heart and Lungs, University Medical Center, Utrecht, The Netherlands
Lecture: Addressing ARVD/C in The NetherlandsSamuel Sears, PhD, East Carolina University
Lecture: Psychosocial Challenges for ICD Patients -
William McKenna, MD, Professor of Cardiology, UCL Division of Medicine
Lecture: Genetics and Diagnosis of ARVC -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: An update on the NIH-sponsored study: Multidisciplinary Study of Right Ventricular DysplasiaSamuel Sears, PhD, Gainesville, Florida
Lecture: Pscyhosocial Challenges for ICD Patients -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Jeffrey A. Towbin, MD, Baylor College of Medicine, Houston, Texas -
Domenico Corrado, MD, PhD, University of Padua, Italy
Lecture: Diagnostic and therapeutic strategies in arrhythmogenic right ventricular cardiomyopathy/dysplasia -
Kathy Hodgkinson, MD, Genetic Counselor, Memorial University
Lecture: The Newfoundland Experience with ARVD -
Frank Marcus, Professor Emeritus, The University of Arizona
Lecture: How to Better Diagnose and Treat ARVD -
Thomas Winchter MD, FESC, Muenster, Germany
Lecture: What the Patient Should Know about ARVD -
Guy Fontaine, MD, PhD, HDR, Director of Research, Bicetre, Paris, France
Lecture: You See Only What You Look For and Recognize Only What You Know
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