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Armstrong Institute for Patient Safety and Quality

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Parent 2 Parent USA

About the Program

Mission: Promote excellence in P2P programs across the nation.

Vision: All children with disabilities and special health care needs grow up in a family who supports them to potentially lead full lives.

Values:

  • Every parent’s journey has potential value.
  • Parents often have strength and resilience.
  • There may be power in parents supporting one another.
  • Support should be available to parents and families throughout the lifespan.

Population Served

Format: 1:1

Setting: Programs are both community and health care based

People served: Families of children (aged pre-birth to end of life – full lifespan) who have special needs

Program location: Nation-wide; Statewide P2P programs have been established in 38 states and five new ones are currently emerging

Estimated number served: 2016 data shows 19,500 matches made, and an additional 77,000 requests from families for information (31 reporting statewide Parent-to-parent programs)

People in the Program

Recruitment and selection:In the early developing stages, the Parent to Parent program starts with a small number of Support Parents and makes sure that the Support Parents represent the diversity of the families being served.

Training: Generally, training is provided to groups of 8–12 parents, as this group size is small enough to foster comradeship and intimacy but large enough to stimulate the sharing of diverse backgrounds.

Motivation:

  • P2P offers 1:1 consultation with the program coordinator.
  • Many programs offer Support Parents the opportunity to participate in on-going training sessions.
  • Many P2P programs also hold annual recognition events thanking veteran Support Parents.
  • P2P provides training for emerging leaders in policy, health care financing, and advocacy.

Sustaining the Program

Key strategies: Creating evidence-based practices based on research

Critical support: Everyone

Quality control: Annual survey

Contact Us

Parent 2 Parent USA
1825 K St, NW, Suite 250
Washington, DC 20006

Phone: 855-238-8979
Email: memberinfo@p2pusa.org

Website: www.p2pusa.org