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Patient-centered Care and Patient Engagement Projects

doctor showing patient imaging report

Below is a selection of our current and past projects around enhancing patient-centered care and patient engagement.

Comparing Effectiveness of Self-Management and Peer Support Communication Programs among COPD Patients and Family Caregivers: BREATHE 2

Project Dates: July 1, 2016–June 30, 2020

In this project we aim to compare the effectiveness of two strategies to engage patients and family caregivers in successfully managing chronic obstructive pulmonary disease (COPD) in real-world settings using health care professionals and/or peer mentors to deliver the communications. Funded by the Patient-Centered Outcomes Research Institute (PCORI)

A Road-map for Establishing Peer Support in Research and the Real World

Project Dates: Feb. 1, 2016–Jan. 31, 2018

This project aims to partner with peer-to-peer support programs that connect patients with others with a similar health condition, people “who have been there” to provide knowledge, experience, and emotional and practical help. Program leaders’ and participants’ perspectives, experiences, needs, successes and challenges will be compiled to develop a road map and field guide on how peer to peer programs can be implemented and sustained. Funded by PCORI.

Patient and Family Education on Mechanical Ventilation

Project Dates: Jan. 1, 2016–Dec. 31, 2016

This project sought to improve communications with patients and families about the risks of mechanical ventilation and develop educational materials about the benefits of being removed from breathing machines as soon as safely possible. Funded by the Agency for Healthcare Research and Quality (AHRQ).
Learn more.

Better Respiratory Education And Treatment Help Empower (BREATHE)

Project Dates: Nov. 1, 2013–April 30, 2018

This project seeks to help people with chronic obstructive pulmonary disease to overcome the obstacles to managing the disease and avoid re-hospitalizations and emergency department visits, while reducing stress on their caregivers at home. Funded by PCORI.

Best Practices in Patient Centered Care

Project Dates: Dec. 1, 2012–Nov. 30, 2013

This research and dissemination project identified concrete innovations and promising practices of United States hospitals that were top performers in delivery of patient-centered care, or who had made remarkable strides in this area. Funded by AHRQ.
Learn more.

Towards Clear and Caring Communication Always

This project partnered with patients and families to develop and evaluate a simulation-based program for training residents on “information sharing” and “caring” aspects of patient-centered communication. Funded in combination with Picker Institute, Gold Foundation and ACGME Challenge Award.