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Sickle cell Improvement across the NorthEast ReGion through Education (SiNERGe) is a multi-state collaborative dedicated to improving care for individuals with sickle cell disease throughout the Northeastern United States, Puerto Rico, and the U.S. Virgin Islands funded by the Health Resources and Services Administration through the Sickle Cell Disease Treatment Demonstration Program. SiNERGe includes sickle cell providers in DC, Delaware, Maryland, New Jersey, New York, Pennsylvania, Virginia, West Virginia, Puerto Rico, and the US Virgin Islands. Together SiNERGe members are working to:
- Increase the number of providers that treat sickle cell patients
- Increase the number of providers prescribing hydroxyurea
- Increase the number of sickle cell patients that are receiving care from providers with greater knowledge of how to treat SCD
- Hydroxyurea Initiation Tool –This web-based instrument is under development to encourage education and shared decision making between patients and providers to assist with starting hydroxyurea. This project is led by Dr. Michelle Eakin with input from pediatric and adult hematologists, community health workers, research coordinators, primary care providers, nurses, and people with sickle cell disease.
- Project ECHO® for Sickle Cell Disease- Project ECHO® (Extension for Community Health Outcomes) began as a way to improve access to care and health outcomes for individuals with Hepatitis C, living in New Mexico. Since its inception in 2003, it has expanded to include over 50 diseases/conditions, in 40 states, and over 10 countries. SiNERGe is the first group to implement Project ECHO® for sickle cell disease. We are working across our region to educate acute care, inpatient, and ambulatory providers on best practices for sickle cell care. Project ECHO utilizes video conferencing technology to hold weekly tele-ECHO® clinics, in which providers present de-identified cases to our expert panel. Our experts then provide recommendations for the care of the patient. In addition, each tele-ECHO® clinic also includes a brief didactic talk on best practices for sickle cell care.