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Community-Based Organizations

William E. Proudford Sickle Cell Fund, Inc.

On August 31, 2004, William E. Proudford passed away of complications of kidney disease resulting from diabetes.  Mr. Proudford also suffered from sickle cell disease (SCD), Paget's disease, and profound hearing loss.  Because of the unique challenges they encountered in understanding and getting adequate treatment for his sickle cell disease, his family started an effort to raise awareness about the disease.  In October, 2005, the William E. Proudford Sickle Cell Fund, Inc. (WEPSCF) was incorporated in Delaware as a non-profit organization.  The organization received its 501(c)(3) tax-exempt status in March, 2006.

Mission:  To support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating disease.

Activities:
artSPEAKS Program
Awareness Program
Sickle Cell Program Support
Annual Fundraiser

Website:
http://wepsicklecell.org

 

The Maryland Sickle Cell Disease Association

The Maryland Sickle Cell Disease Association, Inc. (MSCDA) is a 501(c)(3) tax-exempt non-profit organization that was incorporated in 2006.  MSCDA was formed by concerned parents and interested individuals seeking to improve the lives of persons affected by Sickle Cell Disease in Maryland.  MSCDA seeks to work collaboratively with patients, families, healthcare providers, federal and state agencies and other community-based organizations to promote advocacy, education, research adn excellent healthcare delivery.

Mission:  To improve the quality of life for those affected by sickle cell disease by promoting advocacy, education, research and excellent healthcare delivery.

Activities:
Public School Nurses Training Programs
Public School Administratos and Educators Training Programs
Patient Support Groups

Website:
www.marylandsicklecelldisease.org