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Research Program

Huntington's Disease Center at Johns Hopkins

One of the world's leaders in both clinical and basic research, the Baltimore Huntington's Disease Center (BHDC) at Johns Hopkins offers a wide range of opportunities for individuals and their families to participate in clinical research studies of Huntington's disease (HD). Participants may receive clinical testing and other services relevant to these studies. The National Institute of Neurological Disorders and Stroke, (NINDS), the Huntington's Disease Society of America (HDSA), and the Hereditary Disease Foundation (HDF) provide major funding support for the Center's on-site research programs.

Basic Research - laboratories looking for a cure for HD.

Neuroimaging - measuring changes in the brain to help predict HD.

Clinical Trials - testing experimental treatments for HD.

Genetic Studies - looking for factors that influence disease progression.

Neurogenetic Testing Laboratory providing genetic testing for patients.

For research information, please contact:

Kia Ultz
Research Program Coordinator
410- 955-1349 desk


Mollie W. Jenckes, MHSc, BSN
Study Coordinator. 

410-502-0158 desk


Johns Hopkins University
600 N. Wolfe Street, Meyer 2-181
Baltimore, MD 21287
410- 955-8233 fax


Johns Hopkins Huntington's Disease SUPPORT GROUP

For those concerned about all aspects of Huntington’s disease: individuals, family, friends

Meets at 7PM
2nd Tuesday of the month at College Manor AL
300 W. Seminary Ave.
Lutherville-Timonium, MD 21093

410-252-0440 (for changes due to inclement weather only)

Enter the building through the infirmary entrance at the back of the building.

Call for instructions: 443-838-7120

Call Kit McFarlane, facilitator, for directions and questions:

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Dr. Ross
The Hunt for Huntington's



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