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Clinical Evaluation

Huntington's Disease Center at Johns Hopkins

Supported by the National Institute of Neurological Disorders and Stroke (NINDS) and the Huntington's Disease Society of America (HDSA), this program was founded in 1980 to provide services to individuals with Huntington's disease (HD). Diagnostic evaluations are conducted patients with Huntington's disease and related disorders. Patient may be referred by area neurologists or other physicians, or they may be self-referred. The evaluation clinic is held every Tuesday from 1-4 pm in Meyer 2-181 at The Johns Hopkins Hospital.

During the evaluation clinic, a detailed family and medical history will be obtained and a neurological and psychiatric examination will be conducted. Our extensive knowledge of families with HD in the mid-Atlantic area allows us to determine if an individual can be linked to an existing HD family of if they come from a new family. If individuals are already showing signs and symptoms of HD, genetic testing for HD and related disorders can be done on a diagnostic basis. All these services are provided with support of an National Institute of Health (NIH) research grant. A social work evaluation is also provided as part of the clinic session.

Patients are required to have a primary care physician in the community for non-Huntington's related medical care. Members of the Center interdisciplinary team may see patients for further consultation and follow-up as appropriate.

Services are provided:

  • Diagnostic evaluations
  • Symptomatic genetic testing
  • Consultations
  • Follow-up care
  • Case management
  • Individual and family counseling
  • Referrals to occupational or phsycial therapy or other medical evaluations
  • Predictive genetic testing

For all clinical appointments, please contact:

Deborah Pollard
600 North Wolfe Street, 2-181 Meyer
Baltimore, MD 21287
Telephone: (410) 955-2398

DIRECTIONS to The Johns Hopkins Hospital


Johns Hopkins Huntington's Disease SUPPORT GROUP

For those concerned about all aspects of Huntington’s disease: individuals, family, friends

Meets at 7PM
2nd Tuesday of the month at College Manor AL
300 W. Seminary Ave.
Lutherville-Timonium, MD 21093

410-252-0440 (for changes due to inclement weather only)

Enter the building through the infirmary entrance at the back of the building.

Call for instructions: 443-838-7120

Call Kit McFarlane, facilitator, for directions and questions:

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Dr. Ross
The Hunt for Huntington's



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