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Baltimore Huntington's Disease Center

Support Group | Web Links | Publications


Huntington's Disease Society of America (HDSA)
Baltimore Support Group

Meets on the second Tuesday of each month.
Time: 7:00 PM
Location:  Calvary Baptist Church 
               120 W. Pennsylvania Ave. 
               Towson, MD 21204

To RSVP please call Kit McFarlane, social worker and group facilitator, at


We have provided these web sites as a resource for you. We cannot verify the accuracy of all of the information they contain. Should you have questions regarding information on these sites, please contact your physician.

Huntington's Disease Society of America

Clinical Trial Website for the National Institutes of Health      

Huntington Study Group

Hereditary Disease Foundation

HOPES: Huntington's Outreach Project for Education at Stanford

National Institute of Neurological Disorders and Stroke



A Physician's Guide to the Management of Huntington's Disease,  2nd Edition
by Adam Rosenblatt, M.D, Neal G. Ranen, M.D., Martha A. Nance, M.D., Jane S. Paulsen, Ph.D

Huntington's Disease Society of America
505 Eighth Street, Suite 902
New York, NY 10018

Food & Nutrition

Pass the Calories, Please! by F. Gail
Ordering Information: American Dietetic Association
216 W. Jackson Blvd., Suite 800
Chicago, IL 60606-6995
(312) 899-0040. ISBN: 0-88091-134-6

This cookbook is designed as a practical guide for people who need suggestions on ways to increase calories in their diets. Practical tips are given on how to handle conditions that prevent one from eating well, such as nausea, vomiting, diarrhea, sore or dry mouth, or a general loss of appetite. The recipes included are rich in the nutrients that may be needed at such times, including vitamins, protein, and fiber. The book also discusses eating out, commercial supplements, and food safety.

The Non-Chew Cookbook by J. Randi Wilson
Ordering Information: Wilson Publishing Inc.
P.O. Box 2190
Glenwood Springs, CO 81602-2190
(800) 843-2409


Genetic "Russian Roulette" by Nancy S. Wexler
Hereditary Disease Foundation

Mapping Fate by Alice S. Wexler
Tells the story of a family at risk for HD and the search of the gene that causes the disorder.

General Huntington's Disease

Hope Through Research by Sarah Lieber

Saint Vitus' Dance by Jill Rubalcaba

Handbook for Mortals: Guidance for People Facing Serious Illness
by Joanne Lynn, M.D., Joan Harrold, M.D
w/ forward by Rosalynn Carter

Legal, Financial and Health Care Decisions

Tomorrow's Choices: Preparing Now for Future
American Association of Retired Persons (AARP). A free publication
Ordering Information: 601 E. Street, NW
Washington, DC 20049
Publication Number: #D13479

Personal Stories

Woody Guthrie, A Life by Joe Klein

Faces of Huntington's by Carmen Leal-Pock

Portraits of Huntington's by Carmen Leal-Pock


Frameshift by Robert Sawyer



For information about viewing the HDSA Webinars at a different time, call or email the social worker, Kit McFarlane at 410-955-2497 or

Johns Hopkins / HDSA

For those concerned about all aspects of Huntington’s Disease: individuals, family, friends

Meets at 7PM
2nd Tuesday of the month at
Presbyterian Home of Maryland
400 Georgia Court
Towson, MD 21204

Park on the circular drive in front.
Enter up the ramp to the right of the main entrance. Call Kit McFarlane, facilitator, for directions and questions:

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Dr. Ross
The Hunt for Huntington's



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