Resources

Support Group | Web Links | Publications

SUPPORT GROUP

Huntington's Disease Society of America (HDSA)
Baltimore Support Group

Meets on the second Tuesday of each month.
Time: 7:00 PM
Location:  Calvary Baptist Church 
               120 W. Pennsylvania Ave. 
               Towson, MD 21204

To RSVP please call Kit McFarlane, social worker and group facilitator, at
410-955-2497.

USEFUL WEB LINKS

We have provided these web sites as a resource for you. We cannot verify the accuracy of all of the information they contain. Should you have questions regarding information on these sites, please contact your physician.

Huntington's Disease Society of America
http://www.hdsa.org

Clinical Trial Website for the National Institutes of Health
http://clinicaltrials.gov      

Huntington Study Group
http://www.huntington-study-group.org

Hereditary Disease Foundation
http://www.hdfoundation.org

HOPES: Huntington's Outreach Project for Education at Stanford
http://www.stanford.edu/group/hopes

National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov

PUBLICATIONS

A Physician's Guide to the Management of Huntington's Disease,  2nd Edition
by Adam Rosenblatt, M.D, Neal G. Ranen, M.D., Martha A. Nance, M.D., Jane S. Paulsen, Ph.D

Huntington's Disease Society of America
505 Eighth Street, Suite 902
New York, NY 10018
1-800-345-HDSA

Pass the Calories, Please! by F. Gail
Ordering Information: American Dietetic Association
216 W. Jackson Blvd., Suite 800
Chicago, IL 60606-6995
(312) 899-0040. ISBN: 0-88091-134-6

This cookbook is designed as a practical guide for people who need suggestions on ways to increase calories in their diets. Practical tips are given on how to handle conditions that prevent one from eating well, such as nausea, vomiting, diarrhea, sore or dry mouth, or a general loss of appetite. The recipes included are rich in the nutrients that may be needed at such times, including vitamins, protein, and fiber. The book also discusses eating out, commercial supplements, and food safety.

The Non-Chew Cookbook by J. Randi Wilson
Ordering Information: Wilson Publishing Inc.
P.O. Box 2190
Glenwood Springs, CO 81602-2190
(800) 843-2409
$23.95

Genetic "Russian Roulette" by Nancy S. Wexler
Hereditary Disease Foundation

Mapping Fate by Alice S. Wexler
Tells the story of a family at risk for HD and the search of the gene that causes the disorder.

Hope Through Research by Sarah Lieber

Saint Vitus' Dance by Jill Rubalcaba

Handbook for Mortals: Guidance for People Facing Serious Illness
by Joanne Lynn, M.D., Joan Harrold, M.D
w/ forward by Rosalynn Carter

Tomorrow's Choices: Preparing Now for Future
American Association of Retired Persons (AARP). A free publication
Ordering Information: 601 E. Street, NW
Washington, DC 20049
Publication Number: #D13479

Woody Guthrie, A Life by Joe Klein

Faces of Huntington's by Carmen Leal-Pock

Portraits of Huntington's by Carmen Leal-Pock

Frameshift by Robert Sawyer