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Patient and Family Resources Overview

Huntington's Disease Center at Johns Hopkins

One of the goals of the Huntington's Disease Society of America (HDSA) and the Huntington's Disease Center at Johns Hopkins is to promote education about Huntington's disease. Our aim is to help patients and families better understand the disease and its progression in order to plan and prepare for the future. We do this with support groups, individual and family counseling, a list of relevant publications and helpful web links.

About Huntington's Disease and Related Disorders
We invite you to read the background material on this website for an brief overview of these diseases.

Glossary of Terms 
Learn the meaning of terms you are likely to encounter in your search for information.

Myths About Huntington's Disease
Find out the answers to the most common misconceptions about HD.

Publications/Links/Support Group
Review this list of suggested reading, helpful web links for more information, and details about the HD center Support Group.

 

Johns Hopkins Huntington's Disease SUPPORT GROUP

For those concerned about all aspects of Huntington’s disease: individuals, family, friends

Meets at 7PM
2nd Tuesday of the month at College Manor AL
300 W. Seminary Ave.
Lutherville-Timonium, MD 21093

410-252-0440 (for changes due to inclement weather only)

Enter the building through the infirmary entrance at the back of the building.

Call for instructions: 443-838-7120

Call Kit McFarlane, facilitator, for directions and questions:
410-955-2497


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The Hunt for Huntington's

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