Research Overview

Experiences of Caregivers as Study Partners in Dementia Research

This project is an NIA funded prospective, research ethics study that examines the role, responsibilities and potential ethical challenges of individuals who serve as study partners for persons with dementia who are participating in research.
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Informed Consent and Assent for Dementia Research

This work examines the process used to seek informed consent and assent for research that involves people who have Alzheimer disease and other types of dementia. 
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Care of Nursing Home Residents with Advanced Dementia (CareAD) Study

This study seeks to learn how people with advanced dementia are cared for in nursing homes near the end of life, how health care decisions are made for them, and how health problems and health care affect their quality of life. 
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The Alzheimer Disease Related Quality of Life™ (ADRQL™)

The Alzheimer Disease Related Quality of Life™ (ADRQL™) is a research instrument used to assess health-related quality of life (HRQOL) in persons with Alzheimer disease (AD) and other types of dementia.
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Ethical Aspects of Deep Brain Stimulation for Psychiatric Illness

This program is identifying the ethical and clinical research questions relevant to the emerging application of deep brain stimulation to psychiatric disorder. For more information: 410-955-6736.
Principal Investigator: Peter V. Rabins, M.D., M.P.H.