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CareAD is a prospective cohort study of hospice-eligible nursing home residents with advanced dementia sponsored by the National Institute of Neurological Disorders and Stroke and conducted by investigators at Johns Hopkins University and the University of Maryland. The goal of the study is to describe the residents’ health problems and the type of care they receive near the end of life and to identify the type of health care decisions that are made for them by their surrogate decision makers and how those decisions are made. The CareAD study was conducted at three Baltimore area nursing homes using quantitative and qualitative research methods. Findings from this study will increase our knowledge of how to better care for individuals with dementia near the end of life and how to provide support for their family caregivers.
Black BS, Finucane T, Baker A, Loreck D, Blass D, Fogarty L, Phillips H, Hovanec L, Steele C, Rabins PV. Health problems and correlates of pain in nursing home residents with advanced dementia. Alzheimer Disease and Associated Disorders, 2006, 20(4):283-290.
Maust DT, Blass DM, Black BS, Rabins PV. Treatment decisions regarding hospitalization and surgery for nursing home residents with advance dementia: The CareAD Study. International Psychogeriatrics, 2008, 20(2):406-418.
Blass DM, Black BS, Phillips H, Finucane T, Baker A, Loreck D, Rabins PV. Medication use in nursing home residents with advanced dementia. International Journal of Geriatric Psychiatry, 2008, 23(5):490-496.
Triplett P, Black BS, Phillips H, Fahrendorf SR, Schwartz J, Angelino AF, Anderson D, Rabins PV. Content of advance directives for individuals with advanced dementia. Journal of Aging and Health, 2008, 20(5):583-596; NIHMSID #188001.
Kverno KS, Geiger-Brown J, Black BS, Blass DM, Rabins PV. Neuropsychiatric symptom patterns in hospice-eligible nursing home residents with advanced dementia. Journal of the American Medical Directors Association, 2008, 9(7):509-515; NIHMSID #68822.
Kverno KS, Rabins PV, Blass DM, Hicks K, Black BS. Prevalence and treatment of neuropsychiatric symptoms in hospice eligible nursing home residents with advanced dementia. Journal of Gerontological Nursing, 2008, 34(12):8-15; NIHMSID #176924.
Black BS, Fogarty LA, Phillips H, Finucane T, Loreck DJ, Baker A, Blass D, Rabins PV. Surrogate decision-makers’ understanding of dementia patients’ wishes for end-of-life care. Journal of Aging and Health, 2009, 21(4):627-650; NIHMSID #174768.
Hicks KL, Rabins PV, Black BS. Predictors of mortality in nursing home residents with advanced dementia. American Journal of Alzheimers Disease & Other Dementias. (In press).