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Eric Benjamin Levey, M.D.

Photo of Dr. Eric Benjamin Levey, M.D.

Associate Professor of Pediatrics

Expertise: Cerebral Palsy, Developmental Disabilities, General Pediatrics, Spina Bifida, Spinal Dysraphism

Research Interests: spina bifida; brain malformations; care of children with special health care needs


The Johns Hopkins Hospital (Main Entrance)
Appointment Phone: 410-955-2000

1800 Orleans St.
Sheikh Zayed Tower
Baltimore, MD 21287 map

Contact for Research Inquiries

Kennedy Krieger Institute
707 N. Broadway
Baltimore, MD 21205 map

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Dr. Eric B. Levey is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. His clinical and research expertise focuses on the medical care of children with severe developmental disabilities, including cerebral palsy, spina bifida and spinal dysraphism. 

At the Kennedy Krieger Institute, an affiliate of Johns Hopkins, he serves as the medical director for both the Pediatric Feeding Disorders Continuum and PACT: Helping Children with Special Needs. He also serves as the associate medical director for the Carter Center for Brain Research in Holoprosencephaly and Related Malformations.

Dr. Levey earned his undergraduate degrees in economics and natural science at the University of Pennsylvania. He remained at Penn for medical school, graduating in 1993. Dr. Levey completed his residency in pediatrics and performed a fellowship in general academic pediatrics at Johns Hopkins.

Since completing the fellowship in 1999, he has been working at the Kennedy Krieger Institute in its spina bifida and cerebral palsy programs. He is the former director of the Philip A. Keelty Center for Spina Bifida & Related Conditions.

Dr. Levey is a member of the American Academy of Pediatrics, Academic Pediatric Association, Society for Research in Hydrocephalus and Spina Bifida and the American Academy for Cerebral Palsy and Developmental Medicine. He is also a member of the professional advisory committee of Johns Hopkins Pediatrics at Home and on the board of the Maryland Coalition for Inclusive Education. He is board certified in neurodevelopmental disabilities and pediatrics. more


  • Associate Professor of Pediatrics

Departments / Divisions



  • B.A., University of Pennsylvania (Pennsylvania) (1989)
  • M.D., Raymond and Ruth Perelman School of Medicine at University of Pennsylvania (Pennsylvania) (1993)

Research & Publications

Research Summary

During his fellowship, Dr. Levey examined the use of pediatric home health care services in the state of Maryland using Medicaid claims data.

Dr. Levey was part of a team of Kennedy Krieger professionals who participated in a Center of Excellence Grant project from the Maryland Department of Health and Mental Hygiene. One component of the project was to develop recommendations for improving communication and coordination between health care, educational and community providers. Another component of the project was to develop guidelines for the care of individuals with spina bifida and cerebral palsy. He subsequently worked on a project to develop and refine recommendations for the role of the health care provider in the transition of adolescents with disabilities to adulthood.

As part of the Carter Center for Brain Research in Holoprosencephaly and Related Malformations, Dr. Levey is working with a group of scientists to study the epidemiology, clinical features, and neuroimaging characteristics of children with HPE. They are also using diffusion tensor imaging (DTI) to study the brains of children with cerebral palsy.

Since 2010, he has been the medical director of the Pediatric Feeding Disorders Program at Kennedy Krieger Institute and is now exploring research opportunities in this area.

Selected Publications

Jacobson LA, Tarazi RA, McCurdy MD, Schultz S, Levey E, Mahone EM, Zabel TA. "The Kennedy Krieger Independence Scales-Spina Bifida Version: a measure of executive components of self-management." Rehabilitation Psychology. 2013:58(1), 98-105.

Zabel TA, Jacobson LA, Zachik C, Levey E, Kinsman S, Mahone EM. "Parent- and self-ratings of executive functions in adolescents and young adults with spina bifida." The Clinical Neuropsychologist. 2011:25(6), 926-941.

Bellin MH, Dicianno BE, Levey E, Dosa N, Roux G, Marben K, Zabel TA. "Interrelationships of sex, level of lesion, and transition outcomes among young adults with myelomeningocele." Developmental Medicine and Child Neurology. 2011:53(7), 647-652.

Monitto CL, Hamilton RG, Levey E, Jedlicka AE, Dziedzic A, Gearhart JP, Boyadjiev SA, Brown RH. "Genetic predisposition to natural rubber latex allergy differs between health care workers and high-risk patients." Anasthesia & Analgesia. 2010:110(5), 1310-1317.

Levey EB, Stashinko E, Clegg NJ, Delgado MR. "Management of children with holoprosencephaly." American Journal of Medical Genetics. Part C, Seminars in Medical Genetics. 2010:154(C), 183-190.

Bellin MH, Zabel TA, Dicianno BE, Levey E, Garver K, Linroth R, Braun P. "Correlates of depressive and anxiety symptoms in young adults with spina bifida." Journal of Pediatric Psychology. 2010:35(7), 778-789.

Hoon AH Jr, Stashinko EE, Nagae LM, Lin DD, Keller J, Bastian A, Campbell ML, Levey E, Mori S, Johnston MV. "Sensory and motor deficits in children with cerebral palsy born preterm correlate with diffusion tensor imaging abnormalities in thalamocortical pathways." Developmental Medicine and Child Neurology. 2009: 51(9), 697-704.

Lacbawan F, Solomon BD, Roessler E, El-Jaick K, Domené S, Vélez JI, Zhou N, Hadley D, Balog JZ, Long R, Fryer A, Smith W, Omar S, McLean SD, Clarkson K, Lichty A, Clegg NJ, Delgado MR, Levey E, Stashinko E, Potocki L, Vanallen MI, Clayton-Smith J, Donnai D, Bianchi DW, Juliusson PB, Njølstad PR, Brunner HG, Carey JC, Hehr U, Müsebeck J, Wieacker PF, Postra A, Hennekam RC, van den Boogaard MJ, van Haeringen A, Paulussen A, Herbergs J, Schrander-Stumpel CT, Janecke AR, Chitayat D, Hahn J, McDonald-McGinn DM, Zackai EH, Dobyns WB, Muenke M. "Clinical spectrum of SIX3-associated mutations in holoprosencephaly: correlation between genotype, phenotype and function." Journal of Medical Genetics. 2009:46(6), 389-398.

Danielsson AJ, Bartonek A, Levey E, McHale K, Sponseller P, Saraste H. "Associations between orthopaedic findings, ambulation and health-related quality of life in children with myelomeningocele." Journal of Children's Orthopedics. 2008:2(1), 45-54.

Dodson JL, Furth SL, Hsiao CJ, Diener-West M, Levey EB, Wu AW, Gearhart JP. "Health related quality of life in adolescents with abnormal bladder function: an assessment using the Child Health and Illness Profile-Adolescent Edition. "The Journal of Urology. 2008 Oct;180(4 Supplement), 1846-1841.

Nagae LM, Hoon AH Jr, Stashinko E, Lin D, Zhang W, Levey E, Wakana S, Jiang H, Leite CC, Lucato LT, van Zijl PC, Johnston MV, Mori S. "Diffusion tensor imaging in children with periventricular leukomalacia: variability of injuries to white matter tracts." American Journal of Neuroradiology. 2007 Aug;28(7), 1213-1222.

Hahn JS, Hahn SM, Kammann H, Barkovich AJ, Clegg NJ, Delgado MR, Levey E. "Endocrine disorders associated with holoprosencephaly." Journal of Pediatric Endocrinology & Medicine. 2005 Oct;18(10), 935-941.

Register BC, Hansel DE, Hutchins GM, Levey EB, Sponseller PD, Leet AI. (2005). "Postoperative gastric rupture in children with cerebral palsy." Journal of Pediatric Orthopedics. 2005 May-Jun;25(3), 280-282.

Activities & Honors


  • Academic Pediatric Association
  • American Academy of Cerebral Palsy and Developmental Medicine
  • American Academy of Pediatrics
  • Society for Research into Hydrocephalus and Spina Bifida

Professional Activities

  • Member, Professional advisory committee, Johns Hopkins Pediatrics at Home
  • Board member, Maryland Coalition for Inclusive Education
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