The Saga of Sam

The Saga of Sam

Just another "normal" day.  Your blood clotting factors are still poor and in the morning you had a major nose bleed.  The ENT doctors examined you and found nothing unusual, other than the dry hospital air.  They recommended a nasal saline spray that came in handy over the next few months.  You were discharged.  I arrived home from work, but no one was there.  Shortly thereafter you and Mom came in from the hospital, Shaun came up from Fee's.  Fee's dog had bitten Shaun.  Shaun had a clean gash in his left arm that looked like it could have been done with a surgical knife.  As we unpacked, we realized that the Trien was wrong and that we would not be able to get more from the local pharmacy due to its scarcity.  Shaun and Mom went to the GBMC ER.  You and I went back to Hopkins to get more Trien.

You are now on a lot of medicine:  Trien; Penicillamine; K; Lasix; Aldactone (diuretic); etc.  Just managing the pills is a feat.  You do great.  You always know what, when, how much, and why.  No resistance, just quiet perseverance.  Nausea and vomiting are frequent.  Nighttimes are long.  Slight fevers are common.  Weight is just under 100.  Your muscle tone is fading.  Even when your weight is low, your belly is distended.  On Sunday evening you have one small muscle spasm, a sign of things to come.