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Patient Stories

Meet some of our former patients whose lives have changed after receiving a cochlear implant at Johns Hopkins.

Tips for Living With a Cochlear Implant

Find answers to the most frequently asked questions about cochlear implantation, device activation, and auditory rehabilitation.

Read these tips to improve your hearing success after cochlear implantation surgery. Use these tips if you are a caregiver to a cochlear implant recipient.


Blake Wilson Seminar on Cochlear Implants

Financial Assistance

Civic/Service Organizations receive charitable donations to purchase hearing aids and other devices for low-income individuals. Clubs often recondition hearing aids and donate them to needy individuals.  These organizations include the National Easter Seal Society, Kiwanis Clubs, March of Dimes, Rotary Clubs, United Way, Sertoma Clubs, Lions International and Optimist Clubs.

Disabled Children’s Relief Fund provides disabled children with assistance to obtain hearing aids and other medical equipment. DCRF focuses special attention on helping children throughout the United States that do not have adequate health insurance. Applications for assistance are available between March and September. To request an application, write to: Disabled Children’s Relief Fund, PO Box 89, Freeport, NY, 11520.

Hike Fund, Inc., the Hearing Impaired Kids Endowment fund, will provide hearing aids and/or assistive devices for children with hearing impairments between the ages of newborn and twenty years whose parents are unable to meet this special need financially. An estimate of 100 children are provided with hearing devices each year. For more information, call 636-928-2101.

Maryland Accessible Telecommunications program provides free assistive telephone communications equipment to qualified individuals residing in the state of Maryland. MAT distributes free TTYs, amplified handsets, and other assistive devices to qualified applicants who have difficulty using the telephone. MAT does not provide hearing aids. For detailed information and an application, contact Maryland Relay Customer Service at 1-800-555-7724. For assistance outside of Maryland, find information about assistance in your state.

Maryland Division of Rehabilitation Services is the state Vocational Rehab program that provides services to people with disabilities who want to work or keep their current employment. Programs and services for eligible individuals may include vocational evaluation, skills training, academic preparation and job placement assistance. People who are hard of hearing and trying to secure or retain employment may be eligible for hearing aids, assistive devices, interpreter services and more.
For more information contact the DORS administrative office at 1-888-554-0334 and they will direct you to your local Maryland office.

Maryland Technology Assistance Program may provide temporary loans of equipment, loans for purchasing equipment, as well as referral services and demonstration centers. This service does not have a hearing aid program. For more information and qualification requirements, call 410-554-9230 or 1-800-832-4827.

Miracle Ear Children’s Foundation provides free Miracle Ear hearing aids and services to children from low-income families. To receive assistance through this foundation the child must be a resident of the United States, 16 years old or younger, in a family with an income level that does not allow for public support and in a family committed to the necessary follow-up services needed as the child grows. For more information, please call 1-800-234-5422.

Starkey Hearing Foundation, in conjunction with the HEAR NOW program, works to provide hearing aids to individuals and families with limited financial resources. This foundation assists individuals who are residents of the United States and qualify under the National Poverty Guidelines for assistance. Contact the Starkey Hearing Foundation at 1-800-769-2799 for an application and more information.

United States Veterans Administration may provide hearing aids and assistive technology for eligible veterans. Depending on the eligibility and the degree of service-related hearing loss, veterans may receive free hearing aid services. Veterans must visit a local VA medical facility for services. For more information, contact the VA Health Care Benefits Center at 1-877-222-8387.

Accommodations During Treatment

Believe in Tomorrow Children's House at Johns Hopkins
Believe In Tomorrow’s hospital housing program, provides overnight accommodations to families of children receiving treatment at the Johns Hopkins Children’s Center in Baltimore, MD. 

Hearing Loss/Cochlear Implant Online Resources

American Academy of Audiology
The worlds largest professional organization of, for and by audiologists

American Cochlear Implant Alliance
ACI Alliance unites the medical community, patients, families, advocates and other professionals to improve the acceptance of and access to cochlear implants for one simple reason: to help enrich people's lives even fuller.

American Speech Language and Hearing Association
ASHAs mission is to ensure that all people with speech, language, and hearing disorders have access to quality services to help them communicate effectively. ASHA is the governing body for speech language pathologists and audiologists.

Center for Hearing and Communication
The Center for the Hard of Hearing's mission is to improve the quality of life for infants, children and adults with all degrees of hearing loss. It accomplishes its mission by providing hearing rehabilitation and human services for people who are hard of hearing or deaf, and their families, regardless of age, ability to pay, or mode of communication, and by striving to empower consumers to achieve their potential.

Cochlear Implant School Toolkit
Information, tips, and strategies to welcome a child with a cochlear implant into a mainstream classroom.

Hands & Voices
Hands & Voices is a non-profit, parent-driven organization dedicated to supporting families of children who are deaf or hard of hearing.

Hearing and Speech Agency
HASA supports and facilitates individual choice in how to communicate.

John Tracy Clinic
The John Tracy clinic's mission is to offer hope, guidance and encouragement to families of infants and preschool children with hearing losses by providing free, parent-centered services worldwide.

Hearing Loss Association of America
HLA is a consumer, educational organization devoted to the welfare and interests of those who cannot hear well, their relatives, and friends.

Laurent Clerc National Deaf Education Center at Gallaudet University
The Laurent Clerc National Deaf Education Center at Gallaudet University provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing.

Listening and Spoken Language Knowledge Center
For children and adults with hearing loss, their families and the professionals who support them.

Maryland Cued Speech Association
The Maryland Cued Speech Association (MDCSA) is a non-profit organization dedicated to promoting and protecting the rights of children and adults in the state of Maryland to utilize and have access to Cued Speech in all settings.

Maryland Parent Connections
Programs for  Families of Young Children who are Deaf and Hard of Hearing

Maryland Technology Assistance Program
MD TAP provides numerous services, including the Assistive Technology Guaranteed Loan Program, established through legislation, which enables people who might ordinarily be denied under a bank's stringent lending criteria to get a loan and to get it significantly below the current lending rate. TAP also provides an Equipment Loan Program and Equipment Display Centers where equipment and devices are displayed and demonstrated to consumers.

National Association of the Deaf
NAD is the oldest and largest constituency organization safeguarding the accessibility and civil rights of 28 million deaf and hard of hearing Americans in education, employment, health care, and telecommunications.

National Consortium on Deaf-Blindness (NCDB)
NCDB is a national technical assistance and dissemination center for children and youth who are deaf-blind. Funded by the U.S. Department of Education's Office of Special Education Programs (OSEP), NCDB builds on the technical assistance activities of NTAC, the information services and dissemination activities of DB-LINK and adds a third focus related to personnel training.

National Cued Speech Association
An organization that promotes utilizing cued speech as a communication mode.

National Institute on Deafness and other Communication Disorders (NIDCD)
NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language.

Oral Deaf Education
Oral Deaf Education provides information and resources.

The River School
The River School provides successful educational experiences for children and their families by uniting the best practices of early childhood education and oral deaf education; and to promote clinical research and training in child language literacy.