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Superficial Siderosis Clinic

Superficial siderosis (SS) is a neurodegenerative condition caused by chronic hemosiderin deposition in the brain and spinal cord.

This rare disorder presents with hearing loss, balance problems, and difficulty walking. If you have a diagnosis of superficial siderosis, you need to be seen by a specialist to find the source of bleeding and potential therapies to stop the bleeding and reverse the damage.

To make an appointment, please call our medical office coordinator at 410-614-1522, option 3.

To reach Dr Levy directly, call 443-287-4412.

Ongoing Clinical Research Studies:

Deferiprone in SS. Testing the safety and efficacy of a lipid-soluble iron chelator. 90-day trial. Recruitment of 10 patients for this pilot study has been met. We are not recruiting any more patients. Start date: Spring 2010. End date: Fall 2010.

Future Clinical Research Studies:

Deferiprone in SS, expanded. Based on the preliminary success of deferiprone in our pilot study, we are planning an expanded study to include more patients and use the drug for 1 year. Expected start date: Summer 2011.


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