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Physicians and Staff
The Johns Hopkins team members are leaders in the field of diagnosing and treating Rasmussen Syndrome.
Our center receives requests for consultation about Rasmussen syndrome from around the world. Our team is comprised of neurologists (including neuroimmunologists), neurosurgeons, and neuropathologists familiar with Rasmussen syndrome and the other conditions that mimic it. Our partners have extensive experience with rehabilitation and neuropsychology services (the latter specially tailored for patient education settings) prior to and after surgery.
Associate Professor of Pediatrics
Director, Center for Pediatric Rasmussen Syndrome
Director, Basic Epilepsy Research, Pediatric Epilepsy Division
Professor of Neurology
Professor of Neurosurgery
Professor of Pediatrics
Chairman, Department of Imaging and Imaging Science at Johns Hopkins Bayview Medical Center
Director of the Division of Pediatric Radiology and Pediatric Neuroradiology, Johns Hopkins Hospital
Co-Director of the Neuro Intensive Care Nursery, Johns Hopkins Hospital
Clinical Director Center for Molecular Imaging (CTMI), Johns Hopkins Bayview Medical Center
Assistant Professor of Pathology
Pediatric Radiology and Pediatric Neuroradiology Fellowship Director
Deputy Director, Division of Pediatric Radiology and Pediatric Neuroradiology
Doerrer, Sarah, CPNP
Other doctors and health care professionals and Kennedy Krieger doctors with special expertise in Rasmussen Syndrome will also be part of the patient care team. These could include:
Critical care doctors and nurses
Physical, speech and occupational therapists
Child Life specialists
The specific doctors and health care professionals involved will depend on the patient's conditions, progress and treatment. Patients usually require 1-3 months of therapy. Patients who begin follow up care at Kennedy Krieger are generally walking in 1-3 months.
Request an Appointment
To request an appointment or refer a patient, please contact the Johns Hopkins Center for Rasmussen Syndrome at 410-955-9100.
Request a Consultation
Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337
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