The Johns Hopkins team members are leaders in the field of diagnosing and treating Rasmussen Syndrome.
Our center receives requests for consultation about Rasmussen syndrome from around the world. Our team is comprised of neurologists (including neuroimmunologists), neurosurgeons, and neuropathologists familiar with Rasmussen syndrome and the other conditions that mimic it. Our partners have extensive experience with rehabilitation and neuropsychology services (the latter specially tailored for patient education settings) prior to and after surgery.
Associate Professor of Pediatrics
Director, Center for Pediatric Rasmussen Syndrome
Director, Basic Epilepsy Research, Pediatric Epilepsy Division
Professor of Neurosurgery
Professor of Neurology
Chairman, Department of Imaging at Johns Hopkins Bayview Medical Center
Medical Director of the Division of Pediatric Radiology
Director of Pediatric Neuroradiology
Co-Director of the Neuro Intensive Care Nursery, Johns Hopkins Hospital
Professor of Oncology
Professor of Pediatrics
Clinical Director, Pediatric Neurosurgery
Assistant Professor of Pathology
Doerrer, Sarah, CPNP
Other doctors and health care professionals and Kennedy Krieger doctors with special expertise in Rasmussen Syndrome will also be part of the patient care team. These could include:
Critical care doctors and nurses
Physical, speech and occupational therapists
Child Life specialists
The specific doctors and health care professionals involved will depend on the patient's conditions, progress and treatment. Patients usually require 1-3 months of therapy. Patients who begin follow up care at Kennedy Krieger are generally walking in 1-3 months.