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What Parents Need to Know
- Rasmussen syndrome typically begins between 1 and 14 years of age. Weakness and other neurological problems often begin 1 to 3 years after frequent seizures start.
- Treatments that suppress the immune system (for example, those designed to treat encephalitis) can be more effective than anti-seizure medications in some cases.
- Surgery is typically the most effective treatment option to remove the affected area of the brain. This procedure is called a hemispherectomy. Children are hospitalized for 7-10 days before transfer to rehabilitation.
- Rehabilitation following surgery is a critical component to recovery. While each patient experience is unique, we have found that some children recover in 2-3 months.
Request an Appointment
To request an appointment or refer a patient, please contact the Johns Hopkins Center for Rasmussen Syndrome at 410-955-9100.
Request a Consultation
Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337
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