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Longitudinal Study

Study objective:

Online questionnaires completed by parents and children will allow us to track what happens in children with primary complex motor stereotypies over time.

Participant eligibility:

Participants must be screened prior to participation, but may be any age. We are currently recruiting children with primary complex motor stereotypies. These movements include flapping or rotating the hands, fluttering fingers in front of the face, flapping/waving arm movements, opening and closing of the hands, and finger wiggling.


Total time commitment: introductory phone screening plus completion of questionnaires online at your own convenience once every 6-12 months.

  1. Introductory phone screening – Parent or guardian completes a telephone questionnaire administered by our Study Coordinator to confirm whether the child meets the eligibility criteria.
  2. Online questionnaires – Parents or individuals with primary complex motor stereotypies will complete several questionnaires online at their own leisure. Questionnaires may take roughly 45-60 minutes to complete once every 6-12 months. Upon completion of Introductory phone screen for eligibility, the Research Coordinator will provide the Access Code to complete the online questionnaires at

More information and enrollment:

Call 410-955-7212

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Pediatric Neurology: 410-955-4259


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