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Symptoms of Schwannomatosis

Schwannomatosis is characterized by multiple schwannomas (tumors) on nerves throughout the body. Extremely intense pain is the main symptom, which can occur when a schwannoma becomes larger or presses on a nerve or nearby tissue. For some people, it is not easy to identify the cause of the pain they experience.

Other symptoms that may be experienced include numbness, tingling, or weakness due to nerve or spinal cord compression.

Schwannomas may cause other symptoms, which vary depending on the location of the tumor. They may include:

  • Difficulty with urinating or bowel dysfunction
  • Facial weakness
  • Headaches
  • Lumps or swollen areas where tumors form under the skin
  • Numbness
  • Vision changes
  • Weakness

Learn more about tumors associated with schwannomatosis.

For more information, contact the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center at 410-502-6732.


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