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Support Groups

Many people and families with neurofibromatosis  or schwannomatosis appreciate being in touch with other people who are similarly affected. The following is a list of support services which can help the patient and family members cope with the emotional and practical issues being faced.

Children's Tumor Foundation

Children's Tumor Foundation
The Children's Tumor Foundation offers resources on neurofibromatosis (NF) research opportunities, as well as information on the condition.

Neurofibromatosis, Inc. Mid-Atlantic

Neurofibromatosis, Inc. Mid-Atlantic
Neurofibromatosis, Inc. Mid-Atlantic provides information and support to people with neurofibromatosis (NF), their families and anyone interested in the disorder.

Advocure for NF2
Advocure for NF2
Advocure for NF2 is an advocacy group which offers resources on research and drug clinical trials for NF2 throughout the world.

 

 
 
 
 
 
 

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