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Neurology and Neurosurgery

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Support Groups

Many people and families with neurofibromatosis  or schwannomatosis appreciate being in touch with other people who are similarly affected. The following is a list of support services which can help the patient and family members cope with the emotional and practical issues being faced.

Children's Tumor Foundation

Children's Tumor Foundation
The Children's Tumor Foundation offers resources on neurofibromatosis (NF) research opportunities, as well as information on the condition.

Neurofibromatosis, Inc. Mid-Atlantic

Neurofibromatosis Mid-Atlantic
Neurofibromatosis Mid-Atlantic provides information and support to people with neurofibromatosis (NF), their families and anyone interested in the disorder.

Advocure for NF2
Advocure for NF2
Advocure for NF2 is an advocacy group which offers resources on research and drug clinical trials for NF2 throughout the world.

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Maryland Patients

For assistance with making an appointment, please contact the Johns Hopkins Comprehensive Neurofibromatosis Center at 410-502-6732.
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Adult Neurology: 410-955-9441
Pediatric Neurology: 410-955-4259
Adult Neurosurgery: 410-955-6406
Pediatric Neurosurgery: 410-955-7337


Traveling for Care?

Whether you're crossing the country or the globe, we make it easy to access world-class care at Johns Hopkins.

Outside of Maryland (toll free)

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Medical Concierge Services

International Patients

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Medical Concierge Services

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