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Treatment for Neurofibromatosis (NF) Type 2

Treatment for neurofibromatosis type 2 (NF2) depends on the symptoms the patient is presenting.

Symptoms:Treatment Options:
balance problems
  • vestibular training
  • physical therapy (PT) / occupational therapy (OT)
hearing loss
  • sign language / alternative communication training
  • BAER (Brainstem Auditory Evoked Response hearing test)
  • hearing aids
  • drug therapy currently under clinical investigation
  • hearing prosthetics
  • Cochlear implant
  • auditory brainstem implant
other CNS / peripheral tumors
  • observation
  • surgery
  • drug therapy currently under clinical investigation
  • medication
  • acupuncture / meditation
  • behavioral interventions
  • tinnitus retraining therapy
  • behavioral interventions
vestibular schwannomas
  • observation
  • clinical trials
  • radiotherapy for specific symptoms
  • surgery

Surgical options for tumors associated with NF2

  • Surgery is the primary treatment for most peripheral nerve tumors associated with NF2.
  • Surgery may also be considered for ependymomas and meningiomas associated with NF2 if they become symptomatic.
  • Surgery is also commonly performed for vestibular schwannomas under specific circumstances.

Observation is often recommended for tumors with slow or no growth.

While there is currently no cure for NF2, there are clinical trials available at the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center.

For more information, contact the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center at 410-502-6732.


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