Presenting Patient-Reported Outcomes Data to Improve Patient and Clinician Understanding and Use
Johns Hopkins Kimmel Cancer Center in Baltimore
Johns Hopkins Bayview Medical Center
Sibley Memorial Hospital
This research looks at new ways that patients can report different aspects about how they are feeling to their health care providers. The new ways involve patients filling out questionnaires about their current functioning and their current symptoms. We are particularly interested in how the results (called the ï¿½scoresï¿½) are displayed, and how to improve these displays in order to make the scores more useful.
People who have had cancer and clinicians who treat cancer may join.
If you agree to be in this study, we will ask you to do the following things: First, you will do a 5-1020-30 minutes exercise. You will go through an example questionnaire and then look at different ways of displaying the results. in which yYou will be asked questions about your understanding of some example displays. This will be followed by a discussion of which aspects of the displays you find useful and which you do not. A few questions have multiple-choice answers, but in general there are no right or wrong answers to the questions in this study. We are really interested in your opinions about what seems to make the most sense to you as a patient and a clinician. We will be audio recording the interview, and it will be typed up(transcribed), but both the recording and the transcription will be marked with a study number rather than your name. You can skip any questions you do not want to answer. The interview will take about 1 hour.
05/26/2016 05:03 AM