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Ben's Story

Today, Ben is a fun-loving 18 year-old who enjoys skateboarding and playing the drums. But in January of 2006, at just 8 years old, Ben began experiencing hip pain and was diagnosed with Ewing’s sarcoma.  At age 13 Ben shared some of his thoughts on his rare cancer diagnosis.

Ewing’s Sarcoma, a rare cancer that is found in bones and soft tissue.  He was 8 years old.  Doctors diagnosed the disease after he started experiencing hip pain, which is unusual for a child his age.  Ben’s mother, Sue, brought him to his pediatrician where he took x-rays of Ben’s hip and found a tumor in his hip joint. The pediatrician then referred him to Johns Hopkins. Ben underwent surgery to have his hip joint and a large part of his bone removed. After surgery, Ben underwent a year of chemotherapy. Because of the amount of bone that had to be removed, Ben had to wear a body cast that stretched from under his arms to below his knees for six weeks.

Four and a half years later, Ben is now cancer free. “Ben’s cancer is a part of our history. It will always be a part of who we are,” explains Sue, “but it’s just that…it’s not the black cloud you think it will be.”

Watch Ben’s Story


Johns Hopkins Children's Center

Pediatric Oncology facilities are located in the Johns Hopkins Children's Center.