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This web page was part of a research study to assess the effectiveness of online support by nurse practitioner Marian Grant, who answered questions on symptoms, treatments and support for pancreatic cancer patients. The study is now closed to additional questions, but a list of questions and answers previously answered by Marian Grant is available.After spending some time reading this Web site, answer our Survey: Take our brief, 10-minute survey about this service.
This Web page was part of a research study to learn if having a palliative care nurse practitioner on this Web site is helpful. This Web page and the study ran for several months. There’s also a link to a short online survey. Please consider filling it out after you’ve spent time on this Web page.
The study is being done by palliative care nurse practitioner, Marian Grant. Learnings from the study will be used to improve the Johns Hopkins Pancreatic Cancer Web site and published so that other cancer Web sites can consider adding such services.
The traffic to this Web page will be monitored along with any questions and comments posted as part of this study. Your participation in the study is voluntary and you must be 18 or older to participate. By posting a question or comment or filling out the online survey, you are agreeing to participate in the study. You will not be asked for any information that will identify you. Any emails sent to the nurse practitioner will have their addresses removed and destroyed. Your computer’s IP address will be linked to any comments you post, emails you may send to the palliative care nurse practitioner and to the online survey you may fill out, but these will be secured within the Web page’s administrative system and will not be made available to the researchers.
There is a risk that participants could misinterpret the nurse practitioner’s information as medical advice. The following disclaimer states that the nurse practitioner will not be making any medical recommendations and that any specific treatment should be pursued with the participant’s primary care, oncology or other healthcare provider. Disclaimer: No two patients with pancreas cancer are identical. The appropriate treatment of individual patients with pancreatic cancer varies greatly depending on the patient's medical and surgical history. The information expressed in this Web page is not medical advice. It is meant only to educate health care professionals and patients about the current status of treatment and research in pancreas cancer at Hopkins. Before making any medical decisions, patients with pancreatic cancer are advised to consult with their personal physicians.
There is the risk that interaction with the nurse practitioner could cause emotional or psychological distress. Any sign of serious emotional or psychological distress, however, will prompt the nurse practitioner to suggest the participant follow up with a local mental health resource.
Palliative care is focused on treating pain, stress, and other symptoms of serious illness. Palliative care doesn’t depend on prognosis and can be given at the same time as treatment that is meant to cure. The goal of palliative care is to relieve suffering and provide the best possible quality of life for patients and families.
A nurse practitioner is a registered nurse with advanced training or a master’s degree in a medical specialty. Nurse practitioners work as primary providers. A nurse practitioner can offer information, education, and other support for people with serious illness and their families.
The nurse practitioner that was available on this Web page is certified in palliative care. She received her master’s degree in nursing at the Johns Hopkins School of Nursing. She has a doctor of nursing practice from the University of Maryland. She has worked in one of the Johns Hopkins hospitals on a palliative care team.
If you have any questions about the study, please contact Dr. Sydney Dy at email@example.com .
Answer our Survey: Take our brief, 10-minute survey about this service.