WHO KNOWS BETTER HOW THEY FEEL THAN THE PATIENT? ELIZABETH TRACEY REPORTS
People who’ve undergone procedures or treatments and are left with the consequences ought to get a chance to record their thoughts in their permanent medical record. That’s a movement afoot at Johns Hopkins and elsewhere, with the intention of informing physicians and other health care providers about the emotional burden of chronic illness. Albert Wu, an MD and health policy expert at Johns Hopkins, describes the initiative.
WU: It’s mostly with regard to chronic illness though we’ve started our work here in cancer patients who we hope have a chronic illness though some of them may have a mortal illness in fact. The reason we started there was because both the illness and treatments can be quite consequential. They can change all sorts of clinical disease related things and they can also change people’s lives. It would be nice if the doctors had regular access to that sort of information. :27
Wu and colleagues have developed a website called PatientViewpoint.org to record such data. At Johns Hopkins, I’m Elizabeth Tracey.