ARVD/C researchers are committed to gaining a better understanding of ARVD/C and developing ways to manage it. Johns Hopkins has the only program solely dedicated to understanding ARVD/C. Our program has two main registries: the ARVD/C Patient Registry and the ICD Registry, which house multiple substudies within.

• Clinical and Genetic Investigations of Right Ventricular Dysplasia - Johns Hopkins ARVD/C Patient Registry – This registry keeps track of patients and family members with ARVD/C, allowing us to understand the cause and course of ARVD/C, including genetic aspects of ARVD/C.
  • Epicardial Ablation Study - a subset of the clinical and genetic investigations

• Predictors of ICD Firing in Right Ventricular Dysplasia –This study focuses on the psychosocial impact on ARVD/C patients living with an ICD, as well as what types of activities result in the ICD to fire.
  • ICD Study Questionnaires

Before you join any study, you should consider whether or not participating in medical research is right for you.

ARVD/C studies are being performed throughout the world. Find a participating location.

To learn more about ARVD/C research, call us at 410-502-7161.