Erby, Lori, PhD, ScM, CGC

Lori A.H. Erby, PhD, ScM, CGC Assistant Scientist   Department of Health, Behavior and Society Johns Hopkins Bloomberg School of Public Health Genetic Counselor, Prenatal Diagnostic Center

EDUCATION

PhD, 2006 The Johns Hopkins University Bloomberg School of Public Health, Department of Health, Behavior and Society

ScM, 2001 The Johns Hopkins University Bloomberg School of Public Health, Department of Health Policy and Management, Genetic counseling training program

BS, 1997 The University of Delaware, Degree with Distinction in Biochemistry

BOARD CERTIFICATION

American Board of Genetic Counseling, 2002

RESEARCH INTERESTS

My primary research interest is in the process of genetic counseling and client outcomes, with a focus on communication to enhance informed decision-making and adaptation. I also have a broad interest in the communication of complex genetics topics outside the realm of genetic counseling, particularly to populations with reduced literacy. Finally, I am interested in the exploration of the psychological and social implications of genetic technologies.

CLINICAL ACTIVITIES

Genetic counselor:  Prenatal genetic counseling, screening, and diagnosis

EDUCATIONAL ACTIVITIES

• Instructor for Thesis Proposal Development for master’s students in genetic counseling at The Johns Hopkins University Bloomberg School of Public Health
• Small group discussion leader for Research Ethics and Integrity at The Johns Hopkins University Bloomberg School of Public Health
• Involved in the research training of genetic counseling students as well as other public health graduate students at The Johns Hopkins University Bloomberg School of Public Health
• Executive Committee Member for the Johns Hopkins Bloomberg School of Public Health/National Human Genome Research Institute Genetic Counseling Training Program
• Clinical supervisor for genetic counseling students

PUBLICATIONS

Journal Articles

Roter D, Erby LH, Larson S (in press).  Assessing oral literacy demand in genetic counseling dialogue.  Social Science and Medicine.

Erby LH, Rushton C and Geller G (2006) “My son is still walking”:  Stages of receptivity to discussions of advance care planning among parents of sons with Duchenne muscular dystrophy.  Seminars in Pediatric Neurology. 13(2): 132-40.

Roter D, Ellington L, Erby LH, Larson S, Dudley W (2006) The Genetic Counseling Video Project: Models of practice.  American Journal of Medical Genetics, Part C. 142C: 209-220.

Axilbund JE, Hamby L, Thompson DB, Olsen SJ, Griffin CA (2005)  Assessment of the use and feasibility of video to supplement the genetic counseling process:  A  cancer genetic counseling perspective.  Journal of Genetic Counseling 14(3):  235-243.

Hamby L and Griffin CA (2003)  Genetic library video reviews:  Cancer Genetics.  Journal of Genetic Counseling 12(2);  185-192.

Book Chapters

Biesecker B and Hamby L.  (2000)  What difference the disability community arguments should make for the delivery of prenatal genetic information; in Parens E and Asch A (Eds).  Prenatal Testing and Disability Rights.  Georgetown University Press, Washington, DC.

Works in progress

Erby LH, Roter D, Larson S, Cho J. The Rapid Estimate of Adult Literacy in Genetics (REAL-G): A means to assess literacy deficits in the context of genetics.  Under review.

CONTACT INFORMATION

Lori Erby, PhD, ScM, CGC
624 N. Broadway St., Rm 750
Baltimore, MD 21205
410-955-2315
Fax:  410-955-7214
lerby@jhsph.edu