Home 
Home : Johns Hopkins Medicine                                
Mission Statement
Project History
Current Family Studies
             Schizophrenia
             Bipolar Disorder
           FAQ
Genetic Evidence
Why Study Ashkenazim?
Educational Materials
Participate!
Latest News and Publications
Event Calendar
Research Teams
Messages From Participants
Financial Support
Collaborators
Giving!
Job Opportunities
Internet Links
Contact Us
Toll Free Telephone Number
Other Projects
Search our Web Page

Confidentiality: Respecting and maintaining privacy

 Confidentiality in research means that a participant’s involvement in the study and study results are kept private. This information is only shared with the permission of the study participant.

Ways that confidentiality is maintained in genetic research:

• No one is told that you are participating in the study without your permission.
• No one is given results from your participation without your permission.
• DNA (genetic) samples are stored with a code instead of your name. Any collaborators are provided samples with only the code attached.

Safeguards against "third-party" access to your research information:

Certificates of confidentiality: Research studies that include the collection of sensitive information, including mental health status and genetic information, can be protected by a Certificate of Confidentiality. This certificate can help ensure that third parties cannot gain access to research records, especially through subpoena.

 If you have any concerns about the confidentiality of a study, please contact Dr. Pulver.

(back)