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Guide to Test Panels for FGFR-Related Craniosynostosis Syndromes 

Click on any syndrome name to see the fee, CPT codes and other test information.   

Syndrome Test Panel 
[Gene; exon(s)]
Test Sensitivity Reference

Apert Syndrome
FGFR2; exon 7 99% Wilkie et al. (1995) Nat Genet 9:101.
Crouzon Syndrome FGFR2; exons 7 & 8
FGFR3; exon 7
90% Lewanda & Jabs (2002)  Craniosynostosis, In Principles and Practices of Medical Genetics, 4th edition.
Jackson-Weiss Syndrome FGFR2; exons 7 & 8
FGFR3; exon 7
90% Lewanda & Jabs (2002) Craniosynostosis, In Principles and Practices of Medical Genetics, 4th edition.
Pfeiffer Syndrome FGFR2; exons 7 & 8
FGFR3; exon 7
FGFR1; exon 7
85% Lewanda & Jabs (2002) Craniosynostosis, In Principles and Practices of Medical Genetics, 4th edition.
Non-Syndromic Coronal Synostosis FGFR2; exons 7 & 8
FGFR3; exon 7
Familial: 74% Lajeunie et al (1999) J Med Genet. 36:9.
Sporadic: 15% Renier et al (2000) J Neurosurg. 92:631.
Saethre-Chotzen Syndrome FGFR2; exon 7
FGFR3; exon 7
TWIST; exon 1*

TWIST1 deletion by MLPA

68% (point mutation)

7% (deletion)

Paznekas et al (1998) Am J Hum Genet 62: 1370.

Crouzon Syndrome with Acanthosis Nigricans
FGFR3; exon 10 99% Wilkes et al (1996) J Med Genet. 33:744.

* There is only one coding exon in the TWIST1 gene.

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