Johns Hopkins DNA Diagnostic Laboratory

PLEASE NOTE: Informed consent from the patient is required prior to ordering a genetic test. The DNA Diagnostic Lab's consent is located on the second page of the requisition form. There is also a patient brochure, "Things Every Patient Should Know Before Consenting to a Genetic Test", available for download.

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Dyskeratosis Congenita 
(Autosomal Dominant)

Genes:     TERT and TR 
Test:   Direct mutation analysis by DNA sequencing of all coding regions plus intron/exon boundaries.
    
CPT Codes:
  83891 x 1
83898 x 23
83904 x 46
83909 x 46
83912 x 1
Sensitivity:   Approximately 10% of patients with dyskeratosis congenita  have a mutation in one of their TERT or TR genes.  Up to 7% of non-pediatric patients with some features of dyskeratosis congenita and aplastic anemia also have a mutation in one of these genes.

Mutations in TERT and TR have also been associated with idiopathic pulmonary fibrosis. 
   

Cost:   $2354
Turn Around Time:    5 to 6 weeks
Special Considerations:   Additional sample is required from patients who may have TERT or TR mutations secondary to possible low white cell counts.  Please send 6 to 9 ml of whole blood if at all possible.  Also, please include a 3 generation pedigree with the patient sample.

Please call the laboratory to find out about prices and codes for prenatal testing and testing for a known familial mutation.  

Link to Sample Requirements

Link to Requisition and Billing forms

Link to clinical information on autosomal dominant Dyskeratosis Congenita.

Link to Patient and Family Page for general resources on genetic testing.