Johns Hopkins DNA Diagnostic Laboratory

PLEASE NOTE: Informed consent from the patient is required prior to ordering a genetic test. The DNA Diagnostic Lab's consent is located on the second page of the requisition form. There is also a patient brochure, "Things Every Patient Should Know Before Consenting to a Genetic Test", available for download.

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Loeys-Dietz Syndrome (LDS)

Gene:    TGFBR2; TGFBR1  
Test:   Direct mutation analysis of the entire coding sequence of TGFBR2 and TGFBR1 by DNA sequencing.
    
CPT Codes:
  TGFBR2:
83891 x 1
83898 x 10
83904 x 15
83909 x 15
83912 x 1

If negative, we will reflex to TGFBR1:
83898 x 9
83904 x 13
83909 x 13
83912 x 1
Sensitivity:   Approximately 60% of patients with LDS have a TGFBR2 mutation, and 40% will have a TGFBR1 mutation.

Mutations in TGFBR2 have also been identified in up to 4% of patients with Marfan-like features (defined in OMIM as the Marfan Syndrome, Type 2 locus).
   

Cost:   $937 for TGFBR2
$773 for TGFBR1
 
Turn Around Time:    4 to 5 weeks for each gene
Special Considerations:   This test is validated only for gene alterations that contribute to the specified phenotype.

Please call the laboratory to find out about prices and codes for prenatal testing, targeted testing for a known familial mutation or for testing on a sample other than blood.  

 Click here for Sample Requirements

Click Here for Requisition and Billing forms

Click here for clinical information on Loeys-Dietz Aortic Aneurysm Syndrome.